TIF’s Pan American Network for Haemoglobin Disorders (PANHD) is hosting an engaging educational webinar that delves into the critical aspects of Thalassaemia Management. Don’t miss this opportunity to learn and connect with others on September 16, 2024.
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EDUCATIONAL WEBINAR FOR PATIENTS WITH THALASSAEMIA | 16 September 2024
September 16, 2024@1:00 pm-2:30 pm
📌 Webinar Title: Educational Webinar for Patients with Thalassaemia
📌 Date & Time: Monday, September 16, 13:00 New York / 14:00 Rio de Janeiro
This session will explore Blood Transfusion Safety and Management as key components of the thalassaemia therapy regimen with presentations from esteemed experts Dr. Kevin H.M. Kuo, MD, MSc, FRCPC, Associate Professor Division of Hematology, Department of Medicine, University of Toronto and Dr. Sandra Regina Loggetto, Pediatric Hematologist, Medical Manager, Transfusion Outpatient Center for Hemoglobinopathies, Sao Paulo Blood Bank, Brazil.
TIF Board Members and Patient Advocates, Ms. Maria Hadjidemetriou, US, and Ms. Bessie Calabria, Canada, will coordinate the discussion.
More about the Pan American Network for Haemoglobin Disorders (PANHD)
The Thalassaemia International Federation (TIF) has made a pivotal move to enhance the care and awareness of haemoglobin disorders in the Americas by launching the Pan American Network for Haemoglobin Disorders (PANHD).
This initiative aims to establish a comprehensive and unified platform that links patient associations, healthcare professionals, and other stakeholders across the continent. By encouraging collaboration and enabling the sharing of knowledge and resources, the network aspires to improve the quality of care and support for individuals affected by these rare blood disorders.
Members of TIF’s PANHD include:
– Cooley’s Anemia Foundation (USA)
– Thalassemia Foundation of Canada (CANADA)
– Brazilian Thalassaemia Association (ABRASTA) (BRAZIL)
– Thalassaemia Foundation of Argentina (FUNDATAL) (ARGENTINA)
– Thalassaemia Association of Argentina (ARGENTINA)
– Society for Inherited & Severe Blood Disorders (T’dad & T’go Ltd) (TRINIDAD & TOBAGO)