Committed to continuing efforts to develop useful tools for individuals with thalassaemia and haemoglobin disorders worldwide, TIF introduces a novel mobile health application for patients with thalassaemia and sickle cell disease, the THALIA Mobile App.
This application is primarily designed to constitute a useful digital tool in helping individuals self-manage their disease more effectively on a daily basis.
The main feature of the application is a calendar, tailored to the needs of people with haemoglobin disorders, that can be easily synchronized with the user’s personal calendar on his mobile phone. In it, users will be able to note everything related to the management and treatment of his disease, such as upcoming blood transfusions, doctor appointments and medication reminders, to score pain levels, as well as record and track other symptoms of the disease, for instance fatigue and mood swings.
In addition, the THALIA App will enable patients to share, if they wish so, useful statistics for their health, such as haemoglobin and ferritin levels, the frequency of blood transfusions, etc., with their treating and supervising physicians, thus allowing them to form a comprehensive picture on the course of their patients´ disease management.
Through the application, users will also have the opportunity to access a wealth of disease-specific information, learn interesting scientific news and discover the vast educational material and the publications of the Thalassaemia International Federation.
The “THALIA Mobile App” has been developed in the framework of the four-year activity program (2018-21) of TIF “Thalassemia in Action” (THALIA) and is co-financed by the Third Health Programme of the European Union.