Thalassaemia
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News
THAL PALS PODCAST | New Episode on TIF’s NTDT Guidelines Out Now
Dr. Κevin Kuo, MD, MSc, Clinician Investigator, and Μrs. Laurice Levine, Thalassaemia Patient Advocate, talk to TIF’s Executive Director, Dr Androulla Eleftheriou, and Dr. Khaled Musallam, Chief Research Officer, MD,…
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TIF News
PUBLICATIONS | Nutrition Guidelines in Thalassemia & PKD
Nutrition holds a significant position in the lives of individuals afflicted with thalassaemia and other hereditary anaemias. As part of its enduring commitment to generating guidelines and educational materials for…
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News
NEWS | WHO Updates Essential Medicines List, Adds New Medicines for Thalassaemia
Until recently, the WHO EML recommended only deferoxamine for iron chelation, limiting patients’ access to other crucial pharmacological alternatives for the effective management of their condition. Since 2019, the Thalassaemia…
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News
PUBLICATION | Travel Guidance for Patients and Families
Welcome to ‘Travel Guidance for Patients & Families’, on the newest TIF’s publications! This practical handbook is intended specifically for travelers with thalassaemia, sickle cell disease, and rare anaemias. Our…
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News
CALL TO ALL PATIENTS | Your Voice Matters in Research!
Today, we invite you to be an active participant in ensuring that research that takes place is aligned with your specific requirements and challenges. Your firsthand experiences as patients offer…
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News
AWARDS | Health Ministry Honours Mr Panos Englezos, TIF’s President
The Health Ministry of Cyprus honoured the outgoing chairman of the National Thalassaemia Committee and President of the Thalassaemia International Federation (TIF), Mr. Panos Englezos, with a prize-giving ceremony. The…
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News
TIFLIX | Taking Thalassaemia Education To The Next Level
Watch Unlimited Videos from World-Renowned Experts This brand-new video library powered by TIF gathers a wealth of audiovisual content on everything you need to know about thalassaemia and sickle cell disease, presented to…
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News
THE ECONOMIST | Dr Androulla Eleftheriou Discusses the Future of Thalassaemia Care
As genomics research moves from the bench to the bedside, clinical applications of genomics will affect even more areas of medicine, improving disease prevention, diagnosis, and treatment. Today, it is…
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News
NEW PUBLICATION | Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia
This novel edition is an invaluable contribution in upgrading the care of individuals with NTDT, a condition that has been underestimated in importance and clinical significance for many years. TIF…
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News
DRUGS | EMA Starts Pilot To Collect Information On Ongoing/Potential Shortages
To help address this issue, the European Medicines Agency (EMA) is starting a pilot to collect information on ongoing or potential shortages, according to the following criteria: The shortage…
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