Prevention
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Scientific Literature
Αlpha-thalassemia Genotypes in Vietnam: A Report of 12,030 Pregnant Women and Their Husbands Performing Prenatal Screening for Alpha-thalassemia
BACKGROUND: Αlpha (α)-thalassemia is a global health concern, and improving screening methods is crucial for disease prevention. This study aimed to assess α-thalassemia genotypes and evaluate the effectiveness of various…
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Scientific Literature
Global Globin Network Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries
The Global Globin Network (GGN) is a project-wide initiative of the Human Variome/Global Variome Project (HVP) focusing on haemoglobinopathies to build the capacity for genomic diagnosis, clinical services, and research…
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Scientific Literature
The Prevention of Thalassemia Revisited: A Historical and Ethical Perspective by the Thalassemia International Federation
Hemoglobinopathies are the most common monogenic disorders in humans; among them, thalassemia constitutes a serious medical and public health problem in high prevalence regions, in a geographical zone ranging from…
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Member News
Malaysian Health Minister: The Country Needs More Geneticists to Detect Thalassaemia Early
Malaysia needs more geneticists in order to identify thalassaemia patients at an early stage, stated Health Minister Datuk Seri Dr Adham Baba, after launching the 2019 Malaysia Thalassaemia Registry (MTR)…
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TIF Publications
Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
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News
JUST LANDED: The ”Prevention of Inherited Diseases – The Example of β-Thalassaemi” Educational Brochure by TIF
Prevention is the only measure that can drastically reduce the incidencies of severe haemoglobin disorders, such as β-thalassaemia. It is also what allowed countries like Greece, Italy and Cyprus to go from…
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Scientific Literature
Update in Laboratory Diagnosis of Thalassemia
Alpha- and β-thalassemias and abnormal hemoglobin (Hb) are common in tropical countries. These abnormal globin genes in different combinations lead to many thalassemic diseases including three severe thalassemia diseases, i.e.,…
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Scientific Literature
Need for a Universal Thalassemia Screening Programme in India? A public health perspective
Thalassemia is one of the significant public health concerns as the carrier rate and disease numbers are increasing worldwide. The increase in number is because of consanguineous marriage which has…
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TIF Publications
Prevention and Diagnosis of Haemoglobinopathies: A Short Guide for Health Professionals and Laboratory Scientists (2016)
Author: Old J. Reviewed by: Angastiniotis M., Petrou M., Traeger-Synodinos J.
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