Prevention
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Scientific Literature
Modelling the Cost-Effectiveness of Non-Invasive Prenatal Testing in the English Sickle Cell and Thalassaemia Screening Pathway
Background: Sickle cell disease (SCD) and thalassaemia are inherited conditions causing chronic anaemia, increased infection risk, and multi-organ failure. Standard of care (SoC) prenatal screening involves carrier blood testing for…
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News
Prevalence of Severe Thalassemia and Performance of Prenatal Screening Tests Among Pregnant Women at Siriraj Thalassemia Center in Thailand
Abstract Severe thalassemia remains a significant public health concern in Southeast Asia. Prenatal screening is an effective strategy for early detection and prevention. This study aimed to determine the prevalence…
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Scientific Literature
Systematic Review of Economic Evaluations in Thalassaemia Screening Programmes Globally: Developing Guidance for Low- and Middle-Income (LMIC) Settings
Objectives Thalassaemia, a genetic blood disorder, is a major public health burden. Most affected individuals reside in low-and-middle-income countries (LMICs). Screening programmes can reduce incidence, but in resource-constrained settings, cost-effectiveness…
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News
WEBINAR | New Advances in the Prevention of Thalassaemia: Potential for High-Prevalence Regions
📌 Webinar Title: New Advances in the Prevention of Thalassaemia: Potential for High-Prevalence Regions 📌 Date & Time: Tuesday, 21 January 2025 | 14:30-16:00 Athens Time, 19:30-21:00 Kuala Lumpur Time Webinar…
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News
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News
ADVOCACY IN ACTION | Highlights from the TIF Meeting with Greek Health Minister, Adonis Georgiadis
A productive meeting between the Greek Minister of Health, Mr. Adonis Georgiades, and a Thalassaemia International Federation (TIF) delegation took place on February 7, 2024. The discussions centered on longstanding…
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Scientific Literature
Applications of Αrtificial Ιntelligence in Τhalassemia: A Comprehensive Review
Thalassemia is an autosomal recessive genetic disorder that affects the beta or alpha subunits of the hemoglobin structure. Thalassemia is classified as a hypochromic microcytic anemia and a definitive diagnosis…
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Scientific Literature
Global Globin Network Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries
The Global Globin Network (GGN) is a project-wide initiative of the Human Variome/Global Variome Project (HVP) focusing on haemoglobinopathies to build the capacity for genomic diagnosis, clinical services, and research…
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Scientific Literature
The Prevention of Thalassemia Revisited: A Historical and Ethical Perspective by the Thalassemia International Federation
Hemoglobinopathies are the most common monogenic disorders in humans; among them, thalassemia constitutes a serious medical and public health problem in high prevalence regions, in a geographical zone ranging from…
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Member News
Malaysian Health Minister: The Country Needs More Geneticists to Detect Thalassaemia Early
Malaysia needs more geneticists in order to identify thalassaemia patients at an early stage, stated Health Minister Datuk Seri Dr Adham Baba, after launching the 2019 Malaysia Thalassaemia Registry (MTR)…
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