Patients
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TIF News
The June Update: TIF’s Guide On COVID-19 Vaccinations & Therapeutic Drugs
As vaccination rates are slowing in the US and Europe, the spread of the Delta coronavirus variants causes growing concerns worldwide with health experts predicting the highly infectious variant to…
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Clinical News
PYRUVATE KINASE DEFICIENCY | Agios Submits New Drug Application To FDA For Mitapivat
“With this NDA filing, we are poised to deliver the first potentially disease-modifying therapy for people with PK deficiency, a chronic, lifelong haemolytic anaemia characterized by serious complications affecting multiple…
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News
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News
New Paper From Blood and Beyond Outlines How To Learn From The Impact Of The COVID-19 Crisis On Blood Use
The multi-stakeholder Blood and Beyond initiative recently published a policy briefing shedding light on how the COVID-19 pandemic affects blood use, blood transfusion services, and patients in whom transfusions are…
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TIF Publications
UPDATE: COVID-19 Developing Vaccinations & Therapeutic Drugs
All the latest updates of TIF's Vaccinations & Therapeutic Drugs Guide for COVID-19 gathered in a single document.
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News
Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”
In occasion of the International Thalassaemia Day 2021, Ali Sattarpour, 45, France, Fédération SOS GLOBI Vice President and TIF’s Thalassaemia Patient Advocacy Group (T-PAG) Member, recounts a life of struggles,…
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News
TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia
The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™) for transfusion-dependent thalassaemia patients, announced last week. The Federation’s distress…
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News
Take Action For The International Thalassaemia Day 2021
INTERNATIONAL THALASSAEMIA DAY 2021 – 8 MAY ”Addressing Health Inequalities Across the Global Thalassaemia Community” Each year, individuals around the globe band together for one day of pure and empowering…
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News
Oxbryta Increased Haemoglobin And Reduced Haemolysis in Adults and Adolescents With SCD
Global Blood Therapeutics, Inc. announced The Lancet Haematology has published the complete analysis of 72-week data from the Phase 3 HOPE Study of Oxbryta® (voxelotor) tablets in patients with sickle cell disease…
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News
The International Thalassaemia Day 2021 Official Page is Now Live!
INTERNATIONAL THALASSAEMIA DAY 2021 – 8 MAY ”Addressing Health Inequalities Across the Global Thalassaemia Community” Visit the International Thalassaemia Day page, now LIVE on TIF website, to find out why…
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