Patients
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TIF Publications
Explaining Gene Therapy in Thalassaemia (2020)
The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
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News
TIF Issues Position Statement in Honour of the World Blood Donor Day 2020
There is one thing that definitely makes us heroes: giving blood. It is a life-saving gesture that any of us in good health should very seriously consider making. Every couple…
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TIF Publications
Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
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News
JUST LANDED: The ”Prevention of Inherited Diseases – The Example of β-Thalassaemi” Educational Brochure by TIF
Prevention is the only measure that can drastically reduce the incidencies of severe haemoglobin disorders, such as β-thalassaemia. It is also what allowed countries like Greece, Italy and Cyprus to go from…
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TIF Publications
COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)
This document compiles information about the coronavirus pandemic specifically addressed to patients with sickle cell disease (SCD).
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News
WORLD BLOOD DONOR DAY 2020: Give blood and make the world a healthier place
On 14 June 2020 WHO and all countries worldwide will celebrate World Blood Donor Day! The campaign theme for this year’s World Blood Donor Day is “Safe blood saves…
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Patients’ stories
IGNORANCE ISN’T BLISS by Jensen Chan
”Growing up as an avid member of the The Boys’ Brigade, my younger brother, Neilsen, was physically active and never had any fitness or health issues. However, at age 16,…
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News
”Why I decided to increase awareness about thalassaemia in Singapore”: The story of Jensen Chan
”I was shocked at the huge discrepancy between how common thalassaemia is and how few people actually know about it.” Jensen Chan, a University student from Singapore, explains how his…
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News
FDA Approves New Formulation for Ferriprox (Deferiprone) Twice-a-Day Tablets
Chiesi Global Rare Diseases, a business unit of Chiesi Farmaceutici S.p.A., today announced that the U.S. Food and Drug Administration (FDA) has approved Ferriprox® (deferiprone) twice-a-day tablets for the treatment…
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International Thalassaemia Day Webinars
Accessibility & Affordability of Novel Therapies for Thalassaemia: The Patients’ Perspective
9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with the Thalassaemia International Federation the accessibility and affordability of the…
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