Patient Stories
-
Patients’ stories
IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I had met for the first time only minutes earlier. But…
Read More » -
News
Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”
In occasion of the International Thalassaemia Day 2021, Ali Sattarpour, 45, France, Fédération SOS GLOBI Vice President and TIF’s Thalassaemia Patient Advocacy Group (T-PAG) Member, recounts a life of struggles,…
Read More » -
News
-
Patients’ stories
THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…
Read More » -
TIF News
“Now I Am The Voice“: A journey of self‐discovery through the eyes of a Thalassaemic
TIF’s Expert Patient and long-standing collaborator and friend, Maria Hadjidemetriou, shares her inspiring and thought-provoking journey with thalassaemia and reflects on the lessons it has taught her. Click on the…
Read More » -
Patients’ stories
A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi
“My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…
Read More » -
Patients’ stories
LOVING LIFE ENOUGH by Mary Manachi
This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments…
Read More » -
Patients’ stories
FIGHTING WITH HOPE by Bidhan Sarkar
Winner Story #3 – International Thalassaemia Day 2019 ”I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…
Read More »