Epidemiology
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News
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Member News
Malaysian Health Minister: The Country Needs More Geneticists to Detect Thalassaemia Early
Malaysia needs more geneticists in order to identify thalassaemia patients at an early stage, stated Health Minister Datuk Seri Dr Adham Baba, after launching the 2019 Malaysia Thalassaemia Registry (MTR)…
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Scientific Literature
The Changing Epidemiology of the Ageing Thalassaemia Populations: A Position Statement of the Thalassaemia International Federation
Therapeutic advances in β-thalassaemia have gradually lead to a significant improvement in prognosis over the past few decades. As a result, patients living in areas where disease-specific programmes offering access…
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Scientific Literature
Estimating the Birth Prevalence and Pregnancy Outcomes of Congenital Malformations Worldwide
Congenital anomaly registries have two main surveillance aims: firstly to define baseline epidemiology of important congenital anomalies to facilitate programme, policy and resource planning, and secondly to identify clusters of…
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Scientific Literature
Rare Single Gene Disorders: Estimating Baseline Prevalence and Outcomes Worldwide
As child mortality rates overall are decreasing, non-communicable conditions, such as genetic disorders, constitute an increasing proportion of child mortality, morbidity and disability. To date, policy and public health programmes…
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