EDUCATIONAL WEBINAR ON HEART COMPLICATIONS IN HAEMOGLOBINOPATHIES | 30 January 2025

📌 Webinar Title: Management of Thalassaemia: Heart Complications in Haemoglobinopathies
📌 Date & Time: Thursday, 30 January 2025, 13:00 New York / 14:00 Rio de Janeiro / 20:00 Athens

Why You Should Attend:

This webinar provides an exceptional opportunity to examine the intricate heart complications associated with thalassaemia and other haemoglobinopathies. Attendees will benefit from the expertise of leading professionals, enhancing their ability to manage thalassaemia for themselves or their loved ones.

Programme Highlights:

• Cardiomyopathy in Hemoglobinopathies: Early Detection and Management
  Led by Prof. Malcolm Walker, Consultant Cardiologist, UCLH, UK, this session will explore the critical aspects of early detection and management strategies for cardiomyopathy in haemoglobin disorders.
• Advances in Non-Invasive Cardiac Imaging for Haemoglobin Disorders
  Prof. John Wood, Professor of Paediatrics and Radiology at the Keck School of Medicine of USC, USA, will guide you through the latest advancements in cardiac imaging techniques.

Meet the Panelists:

• Prof. Malcolm Walker – Consultant Cardiologist, UCLH, UK
• Prof. John C. Wood – Professor of Paediatrics and Radiology, Keck School of Medicine of USC, USA
• Prof. Dimitrios Farmakis – Consultant Cardiologist, National & Kapodistrian University of Athens, Greece
• Dr. Sandra Loggetto – Hematologist, Hematology Department, Sabará Children’s Hospital, Brazil

Don’t miss this chance to learn from the best minds in the field and have your questions answered in real-time!

Managing Heart Health in Hemoglobinopathy Patients

Cardiac complications are a significant concern for patients with haemoglobinopathies, often leading to high rates of morbidity and mortality. However, advancements in regular therapies and diligent follow-up care have notably decreased the incidence of heart disease caused by severe anaemia or iron overload within these patient groups.

The range of cardiovascular issues linked to haemoglobinopathies is broad, encompassing ventricular dysfunction, pulmonary hypertension, pericarditis-myocarditis, arrhythmias, strokes, and thromboembolic events. Despite these challenges, the potential for early detection and effective treatment is promising.

Current diagnostic and therapeutic technologies, combined with an improved understanding of the disease’s pathophysiology, offer pathways to manage and treat heart disease effectively. This underscores the importance of continuous medical innovation and patient education in combating heart-related complications associated with haemoglobinopathies.

More about the Pan American Network for Haemoglobin Disorders (PANHD)

The Thalassaemia International Federation (TIF) has made a pivotal move to enhance the care and awareness of haemoglobin disorders in the Americas by launching the Pan American Network for Haemoglobin Disorders (PANHD).

This initiative aims to establish a comprehensive and unified platform that links patient associations, healthcare professionals, and other stakeholders across the continent. By encouraging collaboration and enabling the sharing of knowledge and resources, the network aspires to improve the quality of care and support for individuals affected by these rare blood disorders.

Members of TIF’s PANHD include:

– Cooley’s Anemia Foundation (USA)
– Thalassemia Foundation of Canada (Canada)
– Brazilian Thalassaemia Association (ABRASTA) (Brazil)
– Thalassaemia Foundation of Argentina (FUNDATAL) (Argentina)
– Thalassaemia Association of Argentina (Argentina)
– Society for Inherited & Severe Blood Disorders (T’dad & T’go Ltd) (Trinidad and Tobago)