Patient Advocates

NEW WEBINAR | Exploring The Value Of Patient Advocacy For Better Thalassaemia Care
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NEW WEBINAR | Exploring The Value Of Patient Advocacy For Better Thalassaemia Care

The objective of this meeting, which brings together eminent haemoglobinopathies specialists and expert patient advocates from Italy and other countries, is to highlight the pivotal value of advocacy in enabling…
COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patients from America
Webinars

COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patients from America

On June 1st, TIF representatives, Dr Androulla Eleftheriou and Dr Michael Angastiniotis and Mr Loris Brunetta, Board Member, had a fruitful discussion with patient advocates from the AMRO region about…
Accessibility & Affordability of Novel Therapies for Thalassaemia: The Patients’ Perspective
Webinars

Accessibility & Affordability of Novel Therapies for Thalassaemia: The Patients’ Perspective

9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with the Thalassaemia International Federation the accessibility and affordability of the…
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