Patients’ stories
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July 19, 2019
THE BRIDGE TO A CURE by Linda Brown
Winner Story #1 – International Thalassaemia Day 2019 ”There’s a certain uniqueness to raising a child with a genetic blood disorder that you didn’t know exists. My parents learned…
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April 5, 2021
LIVING WITH THALASSAEMIA: A STRUGGLE & MANAGEMENT by Pranab Mishra
Thalassaemia has affected my life from various aspects. I was diagnosed with this disorder at the age of two and thalassaemia has been a part of my life since then.…
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March 15, 2022
IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I had met for the first time only minutes earlier. But…
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June 12, 2019
FROM PUMP TO PILL by Chanapa Tantibanchachai
Winner Story #1 – International Thalassaemia Day 2018 ”As I reflect on my past, present and future as a thalassemia patient, I can’t help but be in complete awe…
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June 12, 2019
مييا حمااكة واقعي مع الثالس by Hanady Alsanwi
Winner Story #2– International Thalassaemia Day 2018 متكرر ما بني الفرتة واألخرى ونظرات ً ال يفارق جسدي ونقل دما ً للمستشفى وآملا يف اعني و الدي ً خوفا و…
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June 12, 2019
LET’S MOVE TO A BETTER FUTURE by Siti Nur Azilayati Rahmah Raman
Winner Story #3 – International Thalassaemia Day 2018 ”My family living in the rural area because my father being assign to that area before I was born. When I was…
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June 14, 2017
EXPRESS IT OUT! by Nitya Gupta
Hi guys, hope you all are doing well. This week I had a painful prick while giving sample, on asking “is it paining really hard” I simply replied nah all…
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