News
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INTERNATIONAL THALASSAEMIA DAY 2025 | Joint Statement by TIF & EBCOG
Under this year’s powerful theme, “Together for Thalassaemia: Uniting Communities, Prioritizing Patients,” the statement underscores the pressing need for inclusive, patient-centred care and highlights the critical importance of education, prevention,…
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INTERNATIONAL THALASSAEMIA DAY 2025 | Essential Campaign Resources Have Landed
Download Campaign Resources The 2025 campaign, “Together for Thalassaemia: Uniting Communities, Prioritising Patients,” calls on everyone to actively engage in creating a more inclusive and patient-centred future. To support you in your…
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THE HIDDEN RISK | Worsening Anaemia Linked to Pregnancy in Individuals with β-Thalassaemia Minor
β-thalassaemia minor is a genetic blood disorder that typically causes mild anaemia which typically does not require medical treatment. However, this study suggests that pregnant women with this condition may…
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NEW STUDY | Pegcetacoplan Shows Potential in Managing CAD and wAIHA
This investigational therapy, which targets complement component C3, has demonstrated the ability to increase haemoglobin levels, reduce haemolysis, and improve fatigue scores, according to the study’s authors. Although not all…
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INTERNATIONAL THALASSAEMIA DAY 2025 | Announcing This Year’s Theme
Guided by the powerful slogans #WeAre1 and #PatientsFirst, we reaffirm our collective commitment to ensuring that individuals living with thalassaemia are not just seen but truly heard, valued, and placed at the heart…
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PAROXYSMAL NOCTURNAL HEMOGLOBINURIA | Patients May See Improved Outcomes with Ravulizumab
The findings showed that patients treated with ravulizumab demonstrated better adherence and persistence compared to those on other complement inhibitors. The ADVANTAGE study, a retrospective longitudinal analysis, included data from…
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JUST RELEASED | 5th Edition of TIF’s Guidelines for the Management of Transfusion Dependent β-Thalassaemia
This edition stands as a seminal resource that provides critical guidance and recommendations to healthcare professionals across various specialties, researchers and all stakeholders involved in the care of individuals affected…
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TIF AI KNOWLEDGE BOT | Your Go-To Source for Thalassaemia Information
In the world of healthcare, staying informed is key. That is why the TIF AI Knowledge Bot is here to revolutionize how you access thalassaemia information. Designed with patients, caregivers,…
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