News
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ITD2025 OFFICIAL REPORT | Uniting Communities, Prioritising Patients
This year’s campaign, led by the Thalassaemia International Federation (TIF) and its 242 member-organisations across 67 countries, was guided by the unifying theme “Together for Thalassaemia: Uniting Communities, Prioritizing…
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WHO Issues First Global Guideline on Sickle Cell Disease in Pregnancy
Why This Matters High maternal risk: Pregnant women with SCD face a 4–11× greater risk of maternal mortality and elevated rates of pre-eclampsia, while their infants are at increased…
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EMPOWERING THE AMERICAS | Secure Your Spot at the 1st TIF Pan-American Conference & 2nd RAIN Summit
Visit the Conference Page for further information.
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INTERNATIONAL THALASSAEMIA DAY 2025 | Joint Statement by TIF & EBCOG
Under this year’s powerful theme, “Together for Thalassaemia: Uniting Communities, Prioritizing Patients,” the statement underscores the pressing need for inclusive, patient-centred care and highlights the critical importance of education, prevention,…
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INTERNATIONAL THALASSAEMIA DAY 2025 | Essential Campaign Resources Have Landed
Download Campaign Resources The 2025 campaign, “Together for Thalassaemia: Uniting Communities, Prioritising Patients,” calls on everyone to actively engage in creating a more inclusive and patient-centred future. To support you in your…
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THE HIDDEN RISK | Worsening Anaemia Linked to Pregnancy in Individuals with β-Thalassaemia Minor
β-thalassaemia minor is a genetic blood disorder that typically causes mild anaemia which typically does not require medical treatment. However, this study suggests that pregnant women with this condition may…
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NEW STUDY | Pegcetacoplan Shows Potential in Managing CAD and wAIHA
This investigational therapy, which targets complement component C3, has demonstrated the ability to increase haemoglobin levels, reduce haemolysis, and improve fatigue scores, according to the study’s authors. Although not all…
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INTERNATIONAL THALASSAEMIA DAY 2025 | Announcing This Year’s Theme
Guided by the powerful slogans #WeAre1 and #PatientsFirst, we reaffirm our collective commitment to ensuring that individuals living with thalassaemia are not just seen but truly heard, valued, and placed at the heart…
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