News
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COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patient Advocates from Europe
Patient Advocates from Greece, Germany, the UK, the Netherlands, Romania and other countries of the WHO European Region exchange thoughts and opinions with TIF about the daunting challenges and concerns…
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COVID-19 & Haemoglobin Disorders: The Cyprus Webinar
In the context of TIF’s intensive efforts for the accurate and timely information of individuals with thalassaemia and sickle cell disease (SCD) in relation to the COVID-19 pandemic, the Federation…
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The Impact of the COVID-19 Pandemic on Patients with Thalassaemia
The Maldives Thalassaemia Society, a TIF Member Association, hosted a live Webinar on the 8th of May to commemorate the International Thalassaemia Day 2020, with the active participation of Dr…
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FDA Grants RMAT Designation to CTX-001™ for the Treatment of Severe TDT β-Thalassaemia & SCD
CRISPR Therapeutics and Vertex Pharmaceuticals announced that the U.S. Food and Drug Administration (FDA) granted Regenerative Medicine Advanced Therapy (RMAT) designation to CTX-001, an investigational, autologous, Gene Editing hematopoietic stem cell therapy, for the treatment of severe Transfusion-Dependent β-Thalassaemia (TDT) and Sickle…
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TIF’s Latest Guide for the COVID-19 Pandemic is Going Public on the International Thalassaemia Day 2020
As the online celebrations for the International Thalassaemia Day 2020 are at their peak, TIF decided to publish today as a gift to its worldwide patient communities a new guide entitled ”COVID-19…
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Reblozyl (luspatercept-aamt) Receives Positive CHMP Opinion for the Treatment of Adults with β-Thalassaemia
On 30 April 2020, the Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion, recommending the granting of a marketing authorisation for the medicinal product REBLOZYL, intended for the treatment of adults…
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The 1st TIF Webinar for Medical Specialists Scheduled for 11 May
The 1st webinar for Medical Specialists organised in the context of TIF’s eThalEd online course has just arrived! Dr Antonio Piga, Professor of Paediatrics & Dean of the Medicine School at…
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TIF’s Global Call for Solidarity & Cooperation in support of WHO
TIF expresses major concerns over the announcement of the United States to suspend financial support for the World Health Organisation (WHO) until completion of a review of the organisation’s activities related…
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