tifwp

ACCEPTING YOURSELF by Nitya Gupta

I don’t want to sound preachy at all, the reason why am writing this article is recently I overheard I…

Read More »

THE NEED FOR SAFE BLOOD DONATIONS FOR β-ΤΗΑLASSAEMIA PATIENTS by Riyad Elbard

Riyad Elbard has been receiving monthly blood transfusions since he was diagnosed with beta-thalassemia at the age of one. Because…

Read More »

GIVING BIRTH by Rita and Andrew Rodricks

We are proud to announce the birth of our twins, Dylan and Ellie, born on the 19th June 2013 at…

Read More »

NTDTs

Non-Transfusion Dependent Thalassaemias (NTDTs) is a term used to label patients who do not need regular blood transfusions for survival but…

Read More »

Thalassaemia cure

At present, the only available approach to curing thalassaemia is bone marrow transplantation, following specific requirements that both the donor…

Read More »

Clinical Trials and updates

Clinical trials are experiments or observations carried out in clinical research, designed to answer specific questions about new treatments such…

Read More »

Beta Thalassaemia

Bone Marrow Transplantation (BMT), also known as Haemopoietic Stem Cell Transplantation (HSCT), is a medical procedure during which stem cells…

Read More »

Thalassaemia Trait

Read the TIF brochure “Thalassaemia Carrier Check: Get Informed, Get Tested” to learn more about the Thalassaemia Trait HERE.

Read More »

World Health Organization (WHO)

WHO Model List of Essential Medicines (2023) Tracking Universal Health Coverage: Global Monitoring Report (2023) WHO Global Patient Safety Action…

Read More »

United Nations Economic & Social Council (ECOSOC)

In April 2017, the United Nations Economic and Social Council (ECOSOC) adopted the Committee on Non-Governmental Organizations (NGOs) recommendation to…

Read More »