Catherine Skari

ANNUAL REPORT 2023 | Unveiling TIF’s Impactful Achievements

In 2023, TIF enhanced its advocacy efforts with the WHO to advance the UN Sustainable Development Goals 2030 and universal…

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WORLD PATIENT SAFETY DAY 2024 | Get It Right, Make It Safe!

This year the theme is “Improving diagnosis for patient safety” with the slogan “Get it right, make it safe!”, highlighting…

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REGULATORY APPROVAL | PiaSky Becomes the First Monthly Treatment for PNH in the EU

Paroxysmal Nocturnal Haemoglobinuria (PNH) is a rare and life-threatening blood condition where red blood cells are destroyed by the complement…

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ACCESS TO INNOVATION | UK Greenlights Gene-Editing Therapy Casgevy for β-Thalassaemia Treatment

This development opens new treatment avenues for an estimated 460 patients aged 12 and above in England who rely on…

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GLOBAL SURVEY | Understanding the Thalassaemia Community Health Literacy & Its Impact on Care

To improve the understanding of health literacy within the thalassemia community and how this may impact disease management and care,…

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Understanding the Thalassaemia Community Health Literacy and Its Impact on Care

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Iron Chelation Therapy for Children with Transfusion‐Dependent β‐Thalassemia: How Young Is Too Young?

In this review, we provide a summary of evidence on iron overload in young children with transfusion-dependent β-thalassemia (TDT) and…

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Bone Health Impairment in Patients with Hemoglobinopathies: From Biological Bases to New Possible Therapeutic Strategies

Hemoglobinopathies are monogenic disorders affecting hemoglobin synthesis. Thalassemia and sickle cell disease (SCD) are considered the two major hemoglobinopathies. Thalassemia…

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Early Detection of Renal Complication in Children With Sickle Cell Disease: A Single Center Prospective Study

Introduction: This observational cross-sectional study aimed to identify predictors of renal complications in pediatric patients with sickle cell disease (SCD)…

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Hoping for a Normal Life: Decision‐Making on Hematopoietic Stem Cell Transplantation by Patients With a Hemoglobinopathy and Their Caregivers

Background: To provide insight into the perspectives of children and young adults with transfusion-dependent thalassemia and sickle cell disease and…

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