Catherine Skari
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Jul- 2024 -25 JulyScientific Literature
Hoping for a Normal Life: Decision‐Making on Hematopoietic Stem Cell Transplantation by Patients With a Hemoglobinopathy and Their Caregivers
Background: To provide insight into the perspectives of children and young adults with transfusion-dependent thalassemia and sickle cell disease and…
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25 JulyScientific Literature
Liver Disease in Patients With Transfusion-Dependent β-Thalassemia: The Emerging Role of Metabolism Dysfunction-Associated Steatotic Liver Disease
In this Editorial, we highlight the possible role that metabolism dysfunction-associated steatotic liver disease (MASLD) may play in the future,…
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25 JulyScientific Literature
Global Longitudinal Strain by Cardiac Magnetic Resonance Associated With Cardiac Iron and Complications in β-Thalassemia Major Patients
Background: The aim of this cross-sectional study was to investigate the association of left ventricular (LV) strain parameters with demographics,…
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25 JulyScientific Literature
Revisiting Iron Overload Status and Change Thresholds as Predictors of Mortality in Transfusion-Dependent β-Thalassemia: A 10-year Cohort Study
Data on iron overload status and change thresholds that can predict mortality in patients with transfusion-dependent β-thalassemia (TDT) are limited.…
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25 JulyScientific Literature
Global, Regional, and National Burden of Thalassemia, 1990–2021: A Systematic Analysis for the Global Burden of Disease
Background: Anemia is a significant contributor to the global disease burden, of which thalassemia is the most common hereditary anaemic…
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25 JulyScientific Literature
Growth and Endocrinopathies Among Children with β-Thalassemia Major Treated at Dubai Thalassemia Centre
Background: β-Thalassemia major (BTM) is one of the most common hereditary anemias worldwide. Patients suffer from iron overload that results…
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25 JulyScientific Literature
Novel Therapeutic Approaches in Thalassemias, Sickle Cell Disease and Other Red Cell Disorders
In this last decade, a deeper understanding of the pathophysiology of hereditary red cell disorders and the development of novel…
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25 JulyScientific Literature
Health‑Related Quality‑of‑Life Impacts Associated with Transfusion‑Dependent β‑Thalassemia in the USA and UK: A Qualitative Assessment
Background: Individuals living with transfusion-dependent β-thalassemia (TDT) experience reduced health-related quality of life due to fatigue and chronic pain, which…
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24 JulyNews
JUST LISTEN | Voices of PK Deficiency Episode on the Impact of New International Standards
Host Dr. Rachael Grace is joined by Tamara Schryver of Thrive with Pyruvate Kinase Deficiency and Alejandra Watson from the…
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19 JulyScientific Literature
Guideline for the Management of Conception and Pregnancy in Thalassaemia Syndromes: A British Society for Haematology Guideline
This comprehensive guideline, developed by a representative group of UK-based medical experts specialising in haemoglobinopathies, addresses the management of conception…
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