Catherine Skari
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Jul- 2024 -19 JulyScientific Literature
Haemoglobinopathies and Other Rare Anemias in Spain: Ten Years of a Nationwide Registry (REHem-AR)
REHem-AR was created in 2013. The progressive implementation of neonatal screening for haemoglobinopathies in Spanish autonomous communities where the registry…
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19 JulyScientific News
How to Manage Thalassaemia During Pregnancy: Expert Advice from the BSH
A comprehensive multidisciplinary approach is essential for managing conception and pregnancy in patients with a variety of medical conditions, including…
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4 JulyNews
NEW APPROVAL | FDA Endorses Piasky for Paroxysmal Nocturnal Hemoglobinuria
Piasky, developed by Roche, is a monoclonal antibody that targets complement protein C5. Crovalimab binds to C5 to prevent its…
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4 July
Pociredir
Update: 31 March 2026 Pociredir is a once daily oral HbF inducer. Results from the 12-week treatment period of the…
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4 July
Osivelotor
Update: 31 March 2026 No update available. Update: 22 December 2025 Results of phase 2 trial and longer-term data…
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2 JulyScientific Literature
Predicting Factors of Survival Rates Among α-and β-Thalassemia Patients: A Retrospective 10-Year Data Analysis
Background: Thalassemia is a genetic hemoglobinopathy in which a defective globin chain can cause transfusion-dependent anemia and other complications. As genotype…
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Jun- 2024 -23 JuneNews
CAD | Enjaymo Not Cost-Effective at Current Price, According to US Study
This conclusion was drawn from a cost-effectiveness study utilizing data from the Phase 3 CARDINAL clinical trial, which backed the…
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17 JuneTIF News
SPOTLIGHT | TIF Wins Prestigious HemaSphere Award at EHA2024
The HemaSphere Awards were presented by the official journal of the European Hematology Association (EHA) during Europe’s most important scientific…
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16 JuneNews
NEW PUBLICATION | Nutrition in Thalassaemia: A Guide for Patients, Families, and Caregivers
The guide encompasses: An overview of the nutritional needs specific to people with thalassaemia Methods for nutritional assessment Detailed explanations…
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3 June

