Catherine Skari
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Feb- 2023 -27 FebruaryClinical News
TOP STORY | EU Approves Luspatercept for Anemia in Patients with Non–Transfusion-Dependent β-Thalassaemia
The approval was based on findings from the phase 2 BEYOND trial, which demonstrated that 77.1% of patients treated with…
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26 FebruaryNews
EMERGENCY APPEAL | TIF Rallies to Provide Earthquake Relief in Turkey and Syria
Among these people, the Thalassaemia International Federation (TIF) estimates that at least 2,000 patients with thalassaemia have been affected, 70%…
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22 FebruaryNews
TIF2023 | The Top International Conference On Thalassaemia Returns This November
The Conference, jointly organised by TIF, the Malaysian Haematology Society, and the Federation of Malaysia Thalassaemia Societies, will feature two…
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22 FebruaryNews
SICKLE CELL DISEASE | Hydroxyurea Use Linked To Higher Rates Of Spleen Removal
The study’s findings also indicated that SCD children treated with hydroxyurea underwent splenectomy surgery at a significantly younger age compared…
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17 FebruaryScientific Literature
Reduction in Vaso-Occlusive Events Following Hematopoietic Stem Cell Transplantation in Patients with Sickle Cell Disease
Hematopoietic stem cell transplantation (HSCT) is potentially curative for patients with sickle cell disease (SCD). Patients with stable donor engraftment…
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15 FebruaryScientific Literature
Longitudinal Study of ICET-A on Glucose Tolerance, Insulin Sensitivity and β-cell Secretion in Eleven β-Thalassemia Major Patients With Mild Iron Overload
Background: Iron chelation therapy (ICT) is the gold standard for treating patients with iron overload, though its long-term effects are still…
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14 FebruaryNews
COMING UP | Share Your Colours For Rare Disease Day 2023
A Few Words About Rare Diseases and the RDD2023 Campaign Rare Disease Day (RDD) is the official international awareness-raising campaign…
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10 FebruaryScientific Literature
Association of Sickle Cell Disease With Severe Maternal Morbidity
Objective: To evaluate the association between sickle cell disease (SCD) and severe maternal morbidity (SMM) in a contemporary cohort of…
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9 FebruaryNews
CLINICAL RESULTS | Roche Reports Positive Data for Crovalimab as Rare Blood Disease Treatment
PNH causes a patient’s red blood cells to break apart, resulting in a range of debilitating symptoms such as anaemia,…
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Jan- 2023 -28 JanuaryScientific Literature
Juggling Between the Cost and Value of New Therapies: Does Science Still Serve Patient Needs?
Thalassaemia International Federation (TIF), representing the united voice of people with thalassaemia and their families globally, has been striving for…
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