Pillars of Work
TIF’s work is organised around five pillars that guide its response to the needs of people living with thalassaemia and support the Federation’s mission worldwide.
1. Advocacy
TIF advocates for better healthcare services for people living with thalassaemia. It promotes the implementation of international clinical guidelines and supports progress towards universal health coverage. Patient rights and equitable access to care are central to this work. TIF strengthens the patient voice and encourages meaningful participation in decisions affecting care and quality of life. Through its advocacy, it works to ensure that patients’ needs and experiences inform healthcare policies and priorities.
2. Education / Awareness
TIF delivers educational programmes addressing thalassaemia, public health and policy. These combine publications and practical resources with workshops, conferences, academic courses, fellowships and preceptorships. Tailored resources help patients and parents build their knowledge and strengthen self-management. Specialised training supports healthcare professionals across medical disciplines. Through activities delivered in person and online, TIF also raises public awareness and makes reliable information more widely accessible.
3. Networking / Collaboration
TIF builds partnerships with health authorities, healthcare institutions, researchers, academic bodies and patient organisations. It also engages with policymakers and non-governmental organisations to advance shared priorities. These relationships encourage collaboration across countries and disciplines. TIF strengthens patient organisation networks, enabling members to exchange experience and support one another. Through these partnerships, it facilitates knowledge-sharing and promotes best practices in thalassaemia care.
4. Projects
TIF develops and contributes to projects that reflect patients’ needs and priorities. It supports research and data collection to identify gaps in healthcare services. These findings inform initiatives aimed at improving care quality and access to treatment. Patient perspectives guide the development of practical, patient-centred approaches. By bringing evidence and patients’ experiences to decision-makers, TIF helps shape healthcare policies and services that better address the needs of those affected.
5. Communications
TIF keeps the thalassaemia community informed about policy developments, scientific advances and emerging health threats. It presents information clearly to support understanding of issues affecting patients and their families. Its communications also promote best practices in patient care. Websites, social media, newsletters and other digital platforms extend the reach of this information. This outreach brings the Federation’s work to wider audiences and supports an informed, engaged community.
Explore TIF’s five pillars of work at a glance – View the Infographic
