Pillars of Work
TIF’s work is organised around five pillars that guide its response to the needs of people living with thalassaemia and support the Federation’s mission worldwide:
1. Patient and Parent Organisations
Supporting the establishment of new national thalassaemia associations and strengthening existing ones. Through education and capacity-building, TIF helps patients and parents develop the knowledge and skills to participate as informed and equal partners in decisions affecting care and quality of life.
2. Education and Knowledge-Sharing
Developing and regularly updating an educational programme that includes:
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- Events at national, regional and international levels
- Educational activities during country and delegation visits
- The preparation, translation and distribution of educational and awareness-raising resources
- Academic courses, fellowships and preceptorship programmes
3. Collaboration and Partnerships
Establishing networks and partnerships with national health authorities, healthcare institutions, medical and scientific associations, patient organisations and other relevant bodies at national, European and international levels.
4. Projects, Policy and Advocacy
Leading and contributing to projects that improve existing policies or support the development of new approaches. TIF also prepares and promotes position papers on issues affecting the health, care, quality of life and safety of people with thalassaemia.
5. Research and Innovation
Supporting and contributing to research and scientific programmes aimed at improving current treatments, developing new therapeutic options and advancing progress towards a cure.
