Mrs. Shobha Tuli, a founding member of Thalassemics India established in 1987, has served as the organization’s Secretary since 1992. In 1993, she supported the creation of the ‘Preeti Tuli Thalassaemia Unit’ at Sir Ganga Ram Hospital in New Delhi, named in honor of her late daughter. Mrs. Tuli has been a board member of TIF since 1994 and currently holds the position of Vice President. Furthermore, she has presided over the Federation of Indian Thalassemics since 2000.
With over 36 years of dedication to the field of Haemoglobinopathies, Thalassaemia holds a special place in her heart. Thalassemics India received the ‘Best Social Organisation Award’ in 1998 from the Ministry of Health, and Mrs. Tuli was presented with the ‘George Englezos Award’ by TIF for her exceptional service to thalassaemia patients in India.
Mrs. Tuli has significantly contributed to developing guidelines on ‘Prevention & Control of Hemoglobinopathies’ for the National Health Mission under the Ministry of Health & Family Welfare, Government of India. She also helped create the ‘National Policy on Hemoglobinopathies’ document for the same ministry.
As a member of the ‘Disability Revision Guidelines Committee,’ appointed by the Ministry of Health & Family Welfare, Mrs. Tuli’s contributions have been acknowledged through numerous awards and recognitions, including a Lifetime Service Award from the Indian Indian Academy of Pediatrics and several accolades from IAP and other esteemed organizations.
