Patients
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TIF Publications
The COVID-19 Pandemic & Haemoglobin Disorders (2020)
An informational leaflet about the COVID-19 pandemic with a special focus on the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).
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News
Novartis To Donate Up To 130 Million Doses Of Hydroxychloroquine To Treat Covid-19
On Friday, 20 March, Novartis announced its commitment to donate up to 130 million doses of generic hydroxychloroquine to support the global COVID-19 pandemic response. Hydroxychloroquine and a related…
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News
TIF’s enriched Leaflet ”The COVID-19 Pandemic & Haemoglobin Disorders” is available today!
During these difficult and challenging times the coronavirus (COVID-19) pandemic is creating at a global level, individuals with underlying medical conditions, such as blood disorders, heart disease, chronic liver disease,…
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TIF News
A Useful Health & Nutrition Short Guide for the COVID-19 Pandemic by TIF
The coronavirus presents many uncertainties, and none of us can completely eliminate the risk of getting infected with COVID-19. Nevertheless, one thing we can do is eat as healthy as…
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News
AABB’s Develops Toolkit with Information Regarding Blood Donation & the COVID-19 Outbreak
As the new coronavirus continues to spread affecting an increasing number of countries around the globe and in response to FDA’s Important Information for Blood Establishments Regarding the Novel Coronavirus…
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Patients’ stories
A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi
“My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…
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News
FT-4202 Granted FDA Fast Track, Rare Pediatric Disease Designations for SCD
FT-4202, a potential disease-modifying oral treatment for sickle cell disease being developed by Forma Therapeutics, has been given fast track and rare pediatric disease designations by the U.S. Food and Drug Administration (FDA). A fast track status…
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News
Rare Disease Day 2020: Abundance of events & vast participation are expected in this year’s RDD
Observed every year on the last day of February and in the 29th of February in 2020, Rare Disease Day seeks to raise awareness among the general public, as well…
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News
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News
FDA grants Orphan Drug Designation for ARU-1801 for the Treatment of Sickle Cell Disease & β-thalassaemia
An investigational gene therapy for Sickle Cell Disease (SCD) and β-thalassaemia, known as ARU-1801, has been given Orphan Drug Designation an orphan drug by the U.S. Food and Drug Administration (FDA), a…
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