Patients
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News
Deferasirox Accord: A new generic of Exjade recommended for approval by the EMA
The Committee for Medicinal Products for Human Use (CHMP), the European Medicines Agency‘ (EMA) committee responsible for human medicines, has recently adopted a positive opinion recommending the granting of a…
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News
Thalassaemia Month of Banyumas 2019 -“Banyumas Goes to Zero Growth of Thalassaemia 2023”
Written by Dinar Faiza (edited) The Indonesian Thalassemia Foundation of Banyumas and the Banyumas District Government organised and launched, from November 1 to November 30, 2019, a massive pilot…
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TIF Publications
Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects related to the disease.
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News
Deferasirox Mylan: A new generic drug for the treatment of iron overload in β-thalassaemia major obtained approval by the EMA
The European Medicines Agency’s (EMA) has recently granted marketing authorisation for the medicinal product ”Deferasirox Mylan”, intended for the treatment of chronic iron overload due to blood transfusions in patients with…
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TIF Publications
Gene Therapy in β-Thalassaemia and Other Haemoglobin Disorders (2019)
An educational leaflet aimed at improving the awareness and comprehension of people with thalassaemia and other haemoglobinopathies worldwide about gene therapy.
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Patients’ stories
FIGHTING WITH HOPE by Bidhan Sarkar
Winner Story #3 – International Thalassaemia Day 2019 ”I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…
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TIF Publications
Bone Marrow Transplantation in β-Thalassaemia (2018)
An educational leaflet with important information for β-thalassaemia patients on hematopoietic stem cell transplantation (HSCT), also known as bone marrow transplantation (BMT).
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