RAIN has a global network of patient groups, patients, and healthcare professionals (HCPs) from around the world who support the reach of the programme by sharing the RAIN resources in their local settings.

Founding Members

Sickle Cell Disease Association of America (SCDAA)

General Members

FAiTh_Fight Against Thalassemia
Thalassaemia Foundation Ghana
Sickle Cell Thalassemia Association of Nigeria
wAIHA Warriors

Individual members

Coming soon…

The benefits of joining RAIN

  • Join and establish a global voice in rare anaemias
  • Represent patients in your country on a global level
  • Gain access to awareness and education materials for day-to-day activities
  • Keep up to date with all the latest advances and new novel therapies and treatments
  • Network and engage with RAIN members from other countries
  • Build further relationships and networks in rare anaemias
  • Join a network of expert organisations sharing best practice and knowledge with other, less experienced patient advocacy associations and individuals



The membership process

To request more information and apply for RAIN membership, contact Rawad Merhi. Following confirmation of membership via email, the process below will be completed:

1 Your organisation’s point of contact(s) will be added to the RAIN email group

2 You will be introduced as a new RAIN member to our steering committee and network

3 You will  be introduced as a new member on all our social media channels

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