TIF Publications
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A Short Guide for the Management of Transfusion-Dependent Thalassaemia (2nd edition – 2022)
Prepared by: Farmakis, D. Reviewed by: Eleſtheriou, A., Bain, B.
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Potentially Curative Approaches for β-Thalassaemia (2021)
A comprehensive infographic with a head-to-head comparison on the most essential aspects of BMT, Gene Therapy & Gene Editing as potentially curative procedures for patients with β-thalassaemia.
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Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
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COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)
This document compiles information about the coronavirus pandemic specifically addressed to patients with sickle cell disease (SCD).
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COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)
A document seeking to offer a risk level classification for thalassaemia and SCD patients in relation to the ongoing COVID-19 pandemic.
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Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)
A list of studies/clinical trials for developing treatments and vaccines for the COVID-19 pandemic. This list is by no means exhaustive, since research in this field is ongoing.
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Blood & COVID-19 (2020)
A guide on blood adequacy and safety during the COVID-19 pandemic, based on official recommendations from internationally recognised bodies.
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A TIF-proposed Haemoglobinopathy Patient Pathway During the COVID-19 Pandemic (2020)
A Patient Care Pathway recommending adjustments to be implemented in the admission of patients to haemoglobinopathy centers, units, or clinics during the COVID-19 pandemic.
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The COVID-19 Pandemic & Haemoglobin Disorders (2020)
An informational leaflet about the COVID-19 pandemic with a special focus on the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).
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Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects related to the disease.
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