Patient Stories
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ROSARIO’S STORY | A True Champion of Resilience
Rosario was more than eager to recount this wonderful experience to TIF for the International Thalassaemia Day 2022 and share some inspiring messages with his peers. “It is important to…
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Patients’ stories
IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I had met for the first time only minutes earlier. But…
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Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”
In occasion of the International Thalassaemia Day 2021, Ali Sattarpour, 45, France, Fédération SOS GLOBI Vice President and TIF’s Thalassaemia Patient Advocacy Group (T-PAG) Member, recounts a life of struggles,…
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Patients’ stories
THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…
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TIF News (AR)
“Now I Am The Voice“: A journey of self‐discovery through the eyes of a Thalassaemic
TIF’s Expert Patient and long-standing collaborator and friend, Maria Hadjidemetriou, shares her inspiring and thought-provoking journey with thalassaemia and reflects on the lessons it has taught her. Click on the…
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Patients’ stories
A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi
“My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…
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Patients’ stories
LOVING LIFE ENOUGH by Mary Manachi
This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments…
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Patients’ stories
FIGHTING WITH HOPE by Bidhan Sarkar
Winner Story #3 – International Thalassaemia Day 2019 ”I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…
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