Patient Stories

THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
Patients’ stories

THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber

´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…
“Now I Am The Voice“: A journey of self‐discovery through the eyes of a Thalassaemic
TIF News (AR)

“Now I Am The Voice“: A journey of self‐discovery through the eyes of a Thalassaemic

TIF’s Expert Patient and long-standing collaborator and friend, Maria Hadjidemetriou, shares her inspiring and thought-provoking journey with thalassaemia and reflects on the lessons it has taught her. Click on the…
A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi
Patients’ stories

A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi

  “My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…
LOVING LIFE ENOUGH by Mary Manachi
Patients’ stories

LOVING LIFE ENOUGH by Mary Manachi

This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments…
FIGHTING WITH HOPE by Bidhan Sarkar
Patients’ stories

FIGHTING WITH HOPE by Bidhan Sarkar

Winner Story #3 – International Thalassaemia Day 2019   ”I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…
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