Patients
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News
SICKLE CELL DISEASE | Intranasal Fentanyl Shows Promise for Rapid Pain Relief in Adults
Fentanyl is a powerful painkiller that has already been widely used in children with SCD and in adults with cancer or chronic pain. Researchers now believe its use in adults…
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News
YOUR RIGHTS, YOUR VOICE | The New Edition of TIF’s Essential Patient Guide is Here!
The Thalassaemia International Federation (TIF) is delighted to announce the publication of the 2nd edition of its guide “Know Your Rights: A Guide for People Living with Thalassaemia and Sickle…
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News
WHO Issues First Global Guideline on Sickle Cell Disease in Pregnancy
Why This Matters High maternal risk: Pregnant women with SCD face a 4–11× greater risk of maternal mortality and elevated rates of pre-eclampsia, while their infants are at increased…
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Education
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News
JUST RELEASED | 5th Edition of TIF’s Guidelines for the Management of Transfusion Dependent β-Thalassaemia
This edition stands as a seminal resource that provides critical guidance and recommendations to healthcare professionals across various specialties, researchers and all stakeholders involved in the care of individuals affected…
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News
EDUCATIONAL WEBINAR ON HEART COMPLICATIONS IN HAEMOGLOBINOPATHIES | 30 January 2025
📌 Webinar Title: Management of Thalassaemia: Heart Complications in Haemoglobinopathies 📌 Date & Time: Thursday, 30 January 2025, 13:00 New York / 14:00 Rio de Janeiro / 20:00 Athens …
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News
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News
JUST LISTEN | Voices of PK Deficiency Episode on the Impact of New International Standards
Host Dr. Rachael Grace is joined by Tamara Schryver of Thrive with Pyruvate Kinase Deficiency and Alejandra Watson from the PKD Foundation to shed light on these ground-breaking guidelines. Listeners…
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News
NEW PUBLICATION | Nutrition in Thalassaemia: A Guide for Patients, Families, and Caregivers
The guide encompasses: An overview of the nutritional needs specific to people with thalassaemia Methods for nutritional assessment Detailed explanations of nutrients particularly important for thalassaemia patients Insights into how…
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News
TIF STUDY | Patient and Caregiver Perceptions of Thalassaemia Care in 2023
The study revealed that most patients with thalassaemia are receiving adequate treatment, including regular blood transfusions, chelation therapy, proper monitoring, and suitable imaging. Out of 2082 participants, 79.5% began transfusion…
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