featured
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News
THE MENA THALASSAEMIA EXPERIENCE: A Two-Day, In-Person Masterclass
IMPORTANT: In light of the current unrest in the Middle East and the evolving regional situation, this masterclass is postponed until further notice. The safety and well-being of all participants,…
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News
U.S. EXIT FROM WHO | Implications for Global Health Cooperation and Preparedness
The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly the COVID-19 pandemic. According to U.S. officials, the organization did…
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News
FDA APPROVES AQVESME™ (mitapivat) | First Oral Therapy for Anaemia Across All Forms of Thalassaemia
This regulatory decision marks a landmark milestone in the management of thalassaemia, as AQVESME is now the first and only therapy approved in the United States indicated for treating anaemia…
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News
EU AGREES LANDMARK REFORM OF PHARMACEUTICAL LEGISLATION | What It Means for Patients and Public Health
This milestone agreement — part of what has been referred to as the “pharma package” — was negotiated between the European Commission, the European Parliament, and the Council of the…
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Education
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News
TOPICS IN FOCUS SERIES | Guidelines for the Management of Thalassaemia Syndromes
Each booklet focuses on a specific aspect of the updated guidelines for transfusion-dependent thalassaemia (TDT), non-transfusion-dependent β-thalassaemia (NTDT), and α-thalassaemia, allowing physicians from various specialties to access critical, evidence-based recommendations…
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TIF News
ANNUAL REPORT 2024 | A Year of Resilience and Progress
It is a privilege to present the Federation’s Annual Report for 2024, capturing a year defined by resilience, innovation, and progress in advancing TIF’s mission to improve the lives of…
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News
SICKLE CELL DISEASE | Inflammation during Menstrual Cycle May Trigger Pain Crises
SCD is a genetic disorder in which red blood cells can become abnormally shaped (“sickle”), leading to blockages in blood vessels, tissue damage, and intense pain known as vaso-occlusive events…
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News
SEVERE APLASTIC ANAEMIA | Stem Cell Transplant Opens New Possibilities
Severe aplastic anaemia is a rare but serious disorder in which the bone marrow fails to produce enough red and white blood cells or platelets. This results in fatigue, infections,…
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News
BOOSTING DONOR HEALTH | How Iron Speeds Post-Donation Recovery
The FORTE trial investigated the effects of oral iron supplementation in blood donors with ferritin levels of 30 µg/L or lower. Participants were randomly assigned to receive a placebo, 30…
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