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RARE DISEASE DAY 2026 | More Than You Can Imagine
This year’s theme, “More Than You Can Imagine,” reminds us that rare diseases are far more common, complex, and impactful than many realise. While each individual condition may affect a…
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News
THALASSAEMIA IN THE AMERICAS | New TIF White Paper Calls for Coordinated Action and Equity in Care
Developed in the context of the 1st TIF Pan-American Conference on Thalassaemia and Other Haemoglobin Disorders, held in Washington, D.C. in July 2025, this publication provides the first region-wide, evidence-based…
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News
U.S. EXIT FROM WHO | Implications for Global Health Cooperation and Preparedness
The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly the COVID-19 pandemic. According to U.S. officials, the organization did…
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News
FDA APPROVES AQVESME™ (mitapivat) | First Oral Therapy for Anaemia Across All Forms of Thalassaemia
This regulatory decision marks a landmark milestone in the management of thalassaemia, as AQVESME is now the first and only therapy approved in the United States indicated for treating anaemia…
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News
EU AGREES LANDMARK REFORM OF PHARMACEUTICAL LEGISLATION | What It Means for Patients and Public Health
This milestone agreement — part of what has been referred to as the “pharma package” — was negotiated between the European Commission, the European Parliament, and the Council of the…
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Conferences
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TIF News
TOPICS IN FOCUS SERIES | Guidelines for the Management of Thalassaemia Syndromes
Each booklet focuses on a specific aspect of the updated guidelines for transfusion-dependent thalassaemia (TDT), non-transfusion-dependent β-thalassaemia (NTDT), and α-thalassaemia, allowing physicians from various specialties to access critical, evidence-based recommendations…
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News
ANNUAL REPORT 2024 | A Year of Resilience and Progress
It is a privilege to present the Federation’s Annual Report for 2024, capturing a year defined by resilience, innovation, and progress in advancing TIF’s mission to improve the lives of…
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News
SICKLE CELL DISEASE | Inflammation during Menstrual Cycle May Trigger Pain Crises
SCD is a genetic disorder in which red blood cells can become abnormally shaped (“sickle”), leading to blockages in blood vessels, tissue damage, and intense pain known as vaso-occlusive events…
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