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TIF WEBINAR SERIES 2026 | Bridging the Communication Gap in Haemoglobinopathy Care
This year, the Thalassaemia International Federation (TIF) launches a transformative quarterly webinar series designed to strengthen dialogue between patients, families, and healthcare providers across the global haemoglobinopathy community. Through practical…
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RARE DISEASE DAY 2026 | More Than You Can Imagine
This year’s theme, “More Than You Can Imagine,” reminds us that rare diseases are far more common, complex, and impactful than many realise. While each individual condition may affect a…
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THALASSAEMIA IN THE AMERICAS | New TIF White Paper Calls for Coordinated Action and Equity in Care
Developed in the context of the 1st TIF Pan-American Conference on Thalassaemia and Other Haemoglobin Disorders, held in Washington, D.C. in July 2025, this publication provides the first region-wide, evidence-based…
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THE MENA THALASSAEMIA EXPERIENCE: A Two-Day, In-Person Masterclass
IMPORTANT: In light of the current unrest in the Middle East and the evolving regional situation, this masterclass is postponed until further notice. The safety and well-being of all participants,…
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U.S. EXIT FROM WHO | Implications for Global Health Cooperation and Preparedness
The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly the COVID-19 pandemic. According to U.S. officials, the organization did…
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FDA APPROVES AQVESME™ (mitapivat) | First Oral Therapy for Anaemia Across All Forms of Thalassaemia
This regulatory decision marks a landmark milestone in the management of thalassaemia, as AQVESME is now the first and only therapy approved in the United States indicated for treating anaemia…
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EU AGREES LANDMARK REFORM OF PHARMACEUTICAL LEGISLATION | What It Means for Patients and Public Health
This milestone agreement — part of what has been referred to as the “pharma package” — was negotiated between the European Commission, the European Parliament, and the Council of the…
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