Patients’ stories

THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber

THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber

´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…
IGNORANCE ISN’T BLISS by Jensen Chan

IGNORANCE ISN’T BLISS by Jensen Chan

 »Growing up as an avid member of the The Boys’ Brigade, my younger brother, Neilsen, was physically active and never had any fitness or health issues. However, at age 16,…
NOW I AM THE VOICE by Maria Hadjidemetriou

NOW I AM THE VOICE by Maria Hadjidemetriou

At 2 ½ years old, I was diagnosed with Thalassaemia, a rare genetic blood disorder that primarily affected those of Mediterranean descent. My parents are both Greek Cypriot and at…
A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi

A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi

  “My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…
A NORMAL LIFE by Miriam Lauria

A NORMAL LIFE by Miriam Lauria

  « My name is Miriam and I live in the province of Matera, Italy. I have been suffering from thalassaemia major since birth. At the age of one year I…
LOVING LIFE ENOUGH by Mary Manachi

LOVING LIFE ENOUGH by Mary Manachi

This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments…
FIGHTING WITH HOPE by Bidhan Sarkar

FIGHTING WITH HOPE by Bidhan Sarkar

Winner Story #3 – International Thalassaemia Day 2019    »I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…
LIFE WITH & WITHOUT THALASSAEMIA by Diane Abou Hamia

LIFE WITH & WITHOUT THALASSAEMIA by Diane Abou Hamia

Winner Story #2 – International Thalassaemia Day 2019    »I had been diagnosed with thalassaemia major at the age of 3 months and had undergone blood transfusions for 24 years!…
THE BRIDGE TO A CURE by Linda Brown

THE BRIDGE TO A CURE by Linda Brown

Winner Story #1 – International Thalassaemia Day 2019    »There’s a certain uniqueness to raising a child with a genetic blood disorder that you didn’t know exists.  My parents learned…
FROM PUMP TO PILL by Chanapa Tantibanchachai

FROM PUMP TO PILL by Chanapa Tantibanchachai

Winner Story #1 – International Thalassaemia Day 2018    »As I reflect on my past, present and future as a thalassemia patient, I can’t help but be in complete awe…
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