TIF Publications

July 16, 2025

A Guide for the Haemoglobinopathy Nurse (2025)

Authors: Androulla Eleftheriou, BSc, MSc, PhD Michael Angastiniotis, MD, DCH Katia Pelides, BA, BSc, MSc, MEd
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July 15, 2025

Know Your Rights: A Guide for People Living with Thalassaemia and Sickle Cell Disease (2025)

Authors: Androulla Eleftheriou, BSc, MSc, PhD Katia Pelides, BA, BSc, MSc, MEd
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December 23, 2024

Guidelines for the Management of Transfusion-Dependent β-Thalassaemia (5th edition – 2025)

Taher, A.T. Farmakis, D. Porter, J.B. Cappellini, M.D. Musallam, K.M.
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December 11, 2024

EU Policies Made Simple – Factsheet Series

A series of factsheets that offer an easy-to-understand overview of what Europe has achieved so far in key health policy areas, such as Access to Drugs, Cross Boarder Healthcare, and…
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June 17, 2024

Nutrition in Thalassaemia: A Guide for Patients, Families and Caregivers (2024)

This indispensable resource has been meticulously crafted by TIF to inform and empower individuals living with thalassaemia, along with their families and caregivers, by offering extensive nutritional guidance tailored to…
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November 8, 2023

Nutrition in Thalassemia & PKD: A Guideline for Clinicians (2023)

A comprehensive publication on nutrition in two inherited haemolytic anaemias; thalassaemia and PKD, aimed at offering a critical review of existing knowledge, benefiting both haematologists and dietitians in managing patients…
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November 6, 2023

Guidelines for the Management of α-Thalassaemia (2023)

The first-ever Guidelines for the Management of α-thalassaemia serve as an indispensable resource for healthcare professionals, researchers, and others involved in the care of individuals with this complex, genetic blood…
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July 17, 2023

Travel Guidance for Patients and Families – Living with Thalassaemia, SCD and other Rare Anaemias (2023)

A useful Travel Guide providing considerations, tips and guidance for people with thalassaemia, sickle cell disease (SCD), and rare anaemias who intend to travel abroad.
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April 16, 2023

Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia (3rd edition – 2023)

Ali T. Taher, MD PhD FRCP Khaled M. Musallam, MD PhD Maria Domenica Cappellini, MD FACP
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August 1, 2022

A Short Guide for the Management of Transfusion-Dependent Thalassaemia (2nd edition – 2022)

Prepared by: Farmakis, D. Reviewed by: Eleſtheriou, A., Bain, B.
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