Catherine Skari

HEALTH TECHNOLOGY ASSESSMENT | EU Implements New Rules to Offer Quicker Access to Advanced Medicines

The new rules establish an EU-wide framework for assessing health technologies by promoting collaboration and coordination among EU Member States.…

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Newborn Screening for Sickle Cell Disease in Catalonia between 2015 and 2022: Epidemiology and Impact on Clinical Events

In 2015, Catalonia introduced sickle cell disease (SCD) screening in its newborn screening (NBS) program along with standard-of-care treatments like…

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Management of Transfusion-Dependent β-Thalassemia (TDT): Expert Insights and Practical Overview from the Middle East

β-Thalassaemia is one of the most common monogenetic diseases worldwide, with a particularly high prevalence in the Middle East region.…

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Challenges of Iron Chelation in Thalassemic Children

Thalassaemia treatment still relies on supportive care, mainly including blood transfusion and iron chelation therapy. Iron chelation is considered the…

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TIF CARE | A New Era in Healthcare Collaboration

  Mark your Calendars for the TIF CARE Launch Currently, TIF Care is in its pilot phase and the official…

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TIF READINESS ASSESSMENT TOOL | Is Your Country Ready for Advanced Thalassaemia Therapies?

In an era where medical advancements are progressing at an unprecedented rate, ensuring that these breakthroughs are accessible and appropriately…

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WEBINAR | New Advances in the Prevention of Thalassaemia: Potential for High-Prevalence Regions

📌 Webinar Title: New Advances in the Prevention of Thalassaemia: Potential for High-Prevalence Regions 📌 Date & Time: Tuesday, 21 January…

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NEW FACTSHEET | The Advanced Therapy Medicinal Products (ATMPs) Labyrinth

Featuring comprehensive information on: The Regulation of ATMPs in the EU List of gene-based products approved by the EMA/FDA Challenges…

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POSITION PAPER | The Views of TIF on Advanced Therapy Medicinal Products (ATMPs)

The Thalassaemia International Federation (TIF) is pleased to share its newly published Position Paper, titled “Advanced Therapy Medicinal Products (ATMPs).”…

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INFOGRAPHICS | Mapping Blood Use in Patients with Thalassaemia Across the EU

Have You Ever Wondered How Much Blood is Consumed by Patients with Thalassaemia in EU Countries? To answer this question,…

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