Sickle Cell Disease
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News
TOPICS IN FOCUS SERIES | Guidelines for the Management of Thalassaemia Syndromes
Each booklet focuses on a specific aspect of the updated guidelines for transfusion-dependent thalassaemia (TDT), non-transfusion-dependent β-thalassaemia (NTDT), and α-thalassaemia, allowing physicians from various specialties to access critical, evidence-based recommendations…
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News
SICKLE CELL DISEASE | Inflammation during Menstrual Cycle May Trigger Pain Crises
SCD is a genetic disorder in which red blood cells can become abnormally shaped (“sickle”), leading to blockages in blood vessels, tissue damage, and intense pain known as vaso-occlusive events…
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News
SICKLE CELL DISEASE | Limited Progress in Sickle Cell Disease Highlights Barriers to Treatment Access
According to the findings, there has been limited improvement in outcomes for SCD patients, in large part due to barriers in accessing first-line therapies such as hydroxyurea. Although several new…
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News
SICKLE CELL DISEASE | Intranasal Fentanyl Shows Promise for Rapid Pain Relief in Adults
Fentanyl is a powerful painkiller that has already been widely used in children with SCD and in adults with cancer or chronic pain. Researchers now believe its use in adults…
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News
EMPOWERING NURSING PRACTICE IN HAEMOGLOBINOPATHIES | Discover the New TIF Guide
Nurses are the heart of haemoglobinopathy care. Their role spans far beyond routine tasks—encompassing complex clinical duties, patient advocacy, case management, emotional and psychosocial support, and education of both patients…
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Scientific News
WHO Issues First Global Guideline on Sickle Cell Disease in Pregnancy
Why This Matters High maternal risk: Pregnant women with SCD face a 4–11× greater risk of maternal mortality and elevated rates of pre-eclampsia, while their infants are at increased…
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News
SICKLE CELL DISEASE | FDA Grants Orphan Drug Designation to AND017
Announced by KIND Pharmaceuticals on October 25, 2024, ODD is granted to a drug or biological product to prevent, diagnose, or treat a rare disease or condition that affects fewer…
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Scientific News
WHAT YOU NEED TO KNOW | EMA Recommends Suspension of Pfizer’s Sickle Cell Disease Drug Oxbryta
Oxbryta, which was designed to treat sickle cell disease, has been a crucial medication for patients with mild-to-moderate symptoms. Approved in the US under an accelerated process in 2019 and…
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Scientific News
Stroke Risk Rises in People with Sickle Cell Disease Despite Treatment Guidelines
A new study reveals that stroke rates are continuing to rise among both adults and children living with sickle cell disease (SCD), despite established standards of care aimed at reducing…
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Scientific Literature
An International Learning Collaborative Phase 2 Trial for Haploidentical Bone Marrow Transplant in Sickle Cell Disease
In the setting of a learning collaborative, we conducted an international multicentre phase 2 clinical trial testing the hypothesis that non-myeloablative related haploidentical BMT with thiotepa and post-transplant cyclophosphamide (PTCy)…
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