Turning Pain into Purpose

As a 29-year-old with thalassaemia, I confront challenges every day. Despite needing monthly blood transfusions, daily iron removal therapy, numerous hospitalizations, and dealing with symptoms like weakness, body swelling, and jaundice, I refuse to be defined by my condition. Instead, I choose to transform my challenges into sources of strength.

I completed my Diploma in Hotel Management and currently work as a freelance Human Resources consultant. Defying expectations as a tribal girl from Odisha, I have organized numerous blood donation camps, health check-ups, and Thalassemia screenings since 2016. My passion for social work led me to found a patient-based organization in 2019 to support those affected by thalassemia and promote prevention in Odisha. The Institution of Thalassemia & Disabled Warriors has since expanded with an office in Delhi to aid rural and tribal patients across India.

My cheerful nature and optimistic outlook encourage others to pursue their dreams. I am grateful for the support my faith and family offer as I tackle each challenge. My philosophy revolves around perseverance: nothing comes easy or perfect, but when faced with undesirable outcomes, we should not lose hope. Instead, work tirelessly because concentrated effort can lead to the accomplishment of our goals.

I have been recognized multiple times for my work and actively collaborate with regional and national NGOs dedicated to blood donations, Thalassemia care, disability advocacy, and the welfare of women and children. Additionally, I continuously impact the public through daily social media posts.

To me, life is simple despite its difficulties; accepting oneself makes navigating life much smoother. I see transfusion days as personal “me time” each month – an opportunity to connect with friends in the thalassemic community amidst a busy schedule – and view medicine as just another part of my routine.

My story is one of resilience; even within the confines of a hospital room or battling illness, I find comfort and camaraderie through sharing experiences with fellow warriors on this challenging journey.

Jharana Mallick