The Thalassaemia International Federation (TIF) is pleased to announce its upcoming webinar titled “Science Serving the Patient: Integrating Innovation, Making it Accessible, Available, and Affordable.”
This webinar aims to equip healthcare professionals and patients worldwide with insights into the latest innovations in thalassaemia care, highlighting their real-world applications and clinical impact.
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SCIENCE SERVING THE PATIENT: Integrating Innovation, Making it Accessible, Available and Affordable | 26 September 2025
August 24, 2025@3:00 pm-4:30 pm
📌 Webinar Title: Science Serving the Patient: Integrating Innovation, Making it Accessible, Available and Affordable
📌 Date & Time: Wednesday, 26 September 2025, 12:00 UK / 14:00 Paris / 15:00 Athens
Why You Should Attend:
Gain a comprehensive update on the latest scientific and clinical developments in the clinical management of haemoglobinopathies, with a focus on the practical use of Luspatercept in thalassaemia care. Expert speakers from leading European centers will share real-world experiences, covering:
- Patient eligibility criteria
- Approaches to monitoring
- Treatment outcomes
- Challenges and patient experiences
- Discontinuation considerations
Meet the Panelists:
- Dr. Filomena Longo – Unit of Thalassaemia and Haemoglobinopathies, Regional HUB Centre, Centre of European Reference Networks for Rare Disease (ERN), Department of Specialist Medicine, Azienda Ospedaliero Universitaria S. Anna, Cona, Ferrara, Italy
- Prof. John B. Porter – Professor of Haematology (Emeritus) and Consultant Haematologist, University College London Hospitals (UCLH), London, UK
Moderators:
Who Should Attend:
- Healthcare Professionals: Physicians, researchers, and allied health professionals with an interest in haemoglobinopathies
- Patients & Advocates: Those wishing to gain insights into the latest research, treatment updates, and emerging therapeutic strategies
For preparatory resources, please explore: TIF Publications.
📢 Be part of this insightful webinar to explore the latest innovations in thalassaemia care. Gain practical knowledge from leading experts and take advantage of the chance to ask your questions during the interactive Q&A!