News
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U.S. Exit from WHO | Implications for Global Health Cooperation and Preparedness
The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly the COVID-19 pandemic. According to U.S. officials, the organization did…
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SICKLE CELL DISEASE | Alzheimer’s Drug Demonstrates Potential Therapeutic Benefit
The study explores the potential of memantine, a medication that has been safely used for many years in the treatment of Alzheimer’s disease. Researchers investigated whether this well-known, affordable drug…
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FDA APPROVES AQVESME™ (mitapivat) | First Oral Therapy for Anaemia Across All Forms of Thalassaemia
This regulatory decision marks a landmark milestone in the management of thalassaemia, as AQVESME is now the first and only therapy approved in the United States indicated for treating anaemia…
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PUTTING PATIENTS FIRST IN CLINICAL RESEARCH | New EU Recommendations to Reduce Trials Bureaucracy
As Prof. Martin Dreyling, Chair of the Coalition for Reducing Bureaucracy, explains: “The current safety requirements for investigators are disproportionately burdensome, to the point that they may obscure relevant safety…
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EU AGREES LANDMARK REFORM OF PHARMACEUTICAL LEGISLATION | What It Means for Patients and Public Health
This milestone agreement — part of what has been referred to as the “pharma package” — was negotiated between the European Commission, the European Parliament, and the Council of the…
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1st TIF NURSING WORKSHOP ON HAEMOGLOBINOPATHIES | 29-30 November 2025
📌 Workshop Title: 1st TIF Nursing Workshop on Haemoglobinopathies 📌 Date & Venue: Saturday & Sunday, 29-30 November 2025 | Titania Hotel, Athens, Greece Overview: This landmark workshop represents…
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TOPICS IN FOCUS SERIES | Guidelines for the Management of Thalassaemia Syndromes
Each booklet focuses on a specific aspect of the updated guidelines for transfusion-dependent thalassaemia (TDT), non-transfusion-dependent β-thalassaemia (NTDT), and α-thalassaemia, allowing physicians from various specialties to access critical, evidence-based recommendations…
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ANNUAL REPORT 2024 | A Year of Resilience and Progress
It is a privilege to present the Federation’s Annual Report for 2024, capturing a year defined by resilience, innovation, and progress in advancing TIF’s mission to improve the lives of…
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SICKLE CELL DISEASE | Inflammation during Menstrual Cycle May Trigger Pain Crises
SCD is a genetic disorder in which red blood cells can become abnormally shaped (“sickle”), leading to blockages in blood vessels, tissue damage, and intense pain known as vaso-occlusive events…
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