News
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TIF STUDY | Desferioxamine Usage Survey
Desferioxamine is crucial in managing iron overload for many patients with thalassaemia and related blood conditions. Recently, the Thalassaemia International Federation (TIF) has received growing reports of shortages in Desferioxamine,…
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Splenectomy as Treatment for Primary Warm Autoimmune Hemolytic Anemia (wAIHA)
Warm Autoimmune Hemolytic Anemia (wAIHA) occurs when the body’s immune system mistakenly produces antibodies that attack and destroy its own red blood cells. In this particular case, the patient presented…
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WHAT YOU NEED TO KNOW | EMA Recommends Suspension of Pfizer’s Sickle Cell Disease Drug Oxbryta
Oxbryta, which was designed to treat sickle cell disease, has been a crucial medication for patients with mild-to-moderate symptoms. Approved in the US under an accelerated process in 2019 and…
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APLASTIC ANEMIA | Hetrombopag Achieves Significant Hematological Responses in Newly Diagnosed Patients
In this study, newly diagnosed patients with transfusion-dependent non-severe aplastic anemia (TD-NSAA) were initially treated with either a combination of cyclosporin A (CsA) and hetrombopag (HETROM+CsA group) or CsA alone…
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THALASSAEMIA WEBINAR FOR ASEAN & OCEANIA HEALTHCARE PROFESSIONALS | 21 October 2024
This webinar provides a unique opportunity to exchange scientific knowledge and gain clinically relevant insights on the latest developments in the management of thalassaemia. 📌 Date: Monday, October 21, 2024…
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UNITING EXPERTS | Highlights from the 1st Nordic Red Blood Cell Meeting
The meeting, organised by the Danish Red Blood Cell Centre of the Copenhagen University Hospital – Rigshospitalet, and led by the Centre’s Research Director, Dr. Andreas Glenthøj, brought together experts…
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ANNUAL REPORT 2023 | Unveiling TIF’s Impactful Achievements
In 2023, TIF enhanced its advocacy efforts with the WHO to advance the UN Sustainable Development Goals 2030 and universal health coverage, ensuring haemoglobinopathies remained a health agenda priority. Regional…
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WORLD PATIENT SAFETY DAY 2024 | Get It Right, Make It Safe!
This year the theme is “Improving diagnosis for patient safety” with the slogan “Get it right, make it safe!”, highlighting the critical value of correct and timely diagnosis in ensuring…
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REGULATORY APPROVAL | PiaSky Becomes the First Monthly Treatment for PNH in the EU
Paroxysmal Nocturnal Haemoglobinuria (PNH) is a rare and life-threatening blood condition where red blood cells are destroyed by the complement system – part of the innate immune system – causing…
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