News
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NEW WHO GUIDELINES | Strengthening Global Guidance for Paediatric and Adolescent Sickle Cell Disease Care
This highly significant publication represents the first WHO normative guideline dedicated to the diagnosis, prevention, and clinical management of sickle-cell disease in children and adolescents aged 0–19 years. It addresses…
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TIF STATEMENT | A Plea for the Untold Victims of Conflict
The purpose of this plea is not to repeat facts well known. Instead, we want this to act as a reminder of the real human cost behind the headlines and…
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APLASTIC ANAEMIA | ASH Publishes Guidelines on Diagnosis and Management of Severe and Very Severe Disease
Aplastic anaemia is a rare disorder characterized by bone marrow failure and reduced production of blood cells, resulting in pancytopenia and increased risks of infection, bleeding, and fatigue. Severe and…
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wAIHA | Rilzabrutinib Receives FDA Breakthrough Therapy Designation
Warm autoimmune haemolytic anaemia is a rare autoimmune disorder characterized by the premature destruction of red blood cells, leading to anemia and other serious complications, such as significant fatigue, dizziness,…
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RARE DISEASE DAY 2026 | More Than You Can Imagine
This year’s theme, “More Than You Can Imagine,” reminds us that rare diseases are far more common, complex, and impactful than many realise. While each individual condition may affect a…
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wAIHA | Sovleplenib Demonstrates Positive Phase III Clinical Results
wAIHA is a rare autoimmune disorder in which the immune system produces antibodies that mistakenly target and destroy red blood cells, leading to anemia and significant clinical burden. The…
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THALASSAEMIA IN THE AMERICAS | New TIF White Paper Calls for Coordinated Action and Equity in Care
Developed in the context of the 1st TIF Pan-American Conference on Thalassaemia and Other Haemoglobin Disorders, held in Washington, D.C. in July 2025, this publication provides the first region-wide, evidence-based…
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U.S. EXIT FROM WHO | Implications for Global Health Cooperation and Preparedness
The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly the COVID-19 pandemic. According to U.S. officials, the organization did…
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