Patients’ stories
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THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…
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IGNORANCE ISN’T BLISS by Jensen Chan
”Growing up as an avid member of the The Boys’ Brigade, my younger brother, Neilsen, was physically active and never had any fitness or health issues. However, at age 16,…
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NOW I AM THE VOICE by Maria Hadjidemetriou
At 2 ½ years old, I was diagnosed with Thalassaemia, a rare genetic blood disorder that primarily affected those of Mediterranean descent. My parents are both Greek Cypriot and at…
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A DECENT LIFE WITH THALASSAEMIA by Dimitri Azzopardi
“My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…
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A NORMAL LIFE by Miriam Lauria
“My name is Miriam and I live in the province of Matera, Italy. I have been suffering from thalassaemia major since birth. At the age of one year I…
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LOVING LIFE ENOUGH by Mary Manachi
This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments…
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FIGHTING WITH HOPE by Bidhan Sarkar
Winner Story #3 – International Thalassaemia Day 2019 ”I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…
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LIFE WITH & WITHOUT THALASSAEMIA by Diane Abou Hamia
Winner Story #2 – International Thalassaemia Day 2019 ”I had been diagnosed with thalassaemia major at the age of 3 months and had undergone blood transfusions for 24 years!…
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THE BRIDGE TO A CURE by Linda Brown
Winner Story #1 – International Thalassaemia Day 2019 ”There’s a certain uniqueness to raising a child with a genetic blood disorder that you didn’t know exists. My parents learned…
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IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I had met for the first time only minutes earlier. But…
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