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Patients’ stories

A NORMAL LIFE by Miriam Lauria

  “My name is Miriam and I live in the province of Matera, Italy. I have been suffering from thalassaemia major since birth. At the age of one year I began to receive blood transfusions every 15/18 days. Many people have this type of disease in a more or less ...

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LOVING LIFE ENOUGH by Mary Manachi

This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments were available to help prevent their death at a fairly young age. Mrs. Manachi passed away a few years ago, ...

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FIGHTING WITH HOPE by Bidhan Sarkar

Winner Story #3 – International Thalassaemia Day 2019   ”I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia and gave a prognosis that my life span would be 15 to 20 years old. My parents at that time ...

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LIFE WITH & WITHOUT THALASSAEMIA by Diane Abou Hamia

Winner Story #2 – International Thalassaemia Day 2019   ”I had been diagnosed with thalassaemia major at the age of 3 months and had undergone blood transfusions for 24 years! But four years ago, I had undergone a bone marrow transplant and had recovered after the hard time I had ...

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THE BRIDGE TO A CURE by Linda Brown

Winner Story #1 – International Thalassaemia Day 2019   ”There’s a certain uniqueness to raising a child with a genetic blood disorder that you didn’t know exists.  My parents learned this in May 1966 when offered the chance to back out of my adoption because of my thalassemia (then known ...

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FROM PUMP TO PILL by Chanapa Tantibanchachai

Winner Story #1 – International Thalassaemia Day 2018   ”As I reflect on my past, present and future as a thalassemia patient, I can’t help but be in complete awe of the clinical advances that have been made just in the past two and a half decades that I’ve been ...

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مييا حمااكة واقعي مع الثالس by Hanady Alsanwi

Winner Story #2– International Thalassaemia Day 2018   متكرر ما بني الفرتة واألخرى ونظرات ً ال يفارق جسدي ونقل دما ً للمستشفى وآملا يف اعني و الدي ً خوفا و صعوبة احلياة اجلسدية واحلياة الواقعية يف ظل احلروب الدائمة يف بالدنا وصعوبة العيش وانقطاع االدوية بشكل مستمر , اصبح اآلمل ...

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