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Our Members

TIF is an umbrella organisation bringing together national thalassaemia and other disease-specific patient associations, health-related organisations and institutions, pharmaceutical companies, health professionals and individuals from across the world.

The Federation currently represents a total of 204 members from 62 countries: 76 are General Members, 50 are Voting Members, 55 are Associate Individuals, 14 are Associate Organisations, and 9 are  Companies.

Membership information

TIF General Members

Name Country
Social and Health Organization for Afghanistan(SOA) AFGHANISTAN
Albanian Association of Thalassaemia and Haemoglobinopathies
ALBANIA
ASSOCIATION “EL AMANI” DES ANEMIES HEMOLYTIQUES CONGENITALES ALGERIA
ASOCIACION DE TALASEMIA ARGENTINA   ARGENTINA
THALASSAEMIA FOUNDATION OF ARGENTINA – FUNDATAL ARGENTINA
BANGLADESH THALASSEMIA FOUNDATION BANGLADESH
LAB ONE FOUNDATION OF THALASSAEMIA  BANGLADESH
THALASSAEMIA WELFARE CENTRE-BANGLADESH BANGLADESH
ASSOCIATION BELGE DE THALASSEMIE ASBL BELGIUM
CAMBODIAN THALASSAEMIA ASSOCIATION CAMBODIA
The Vancouver Thalassaemia Society of B.C.  CANADA
GUANGDONG THALASSAEMIA ASSOCIATION CHINA
GUANGXI THALASSAEMIA FEDERATION CHINA
Thalassaemia Chinese Federation CHINA
Thalassemia Patients Friends Association EGYPT
ASSOCIATION FRANCAISE DE LUTTE CONTRE LES THALASSAEMIES (AFLT) FRANCE
INTERESSENGEMEINSCHAFT SICHELZELLKRANKHEIT UND THALASSAEMIE E.V. (IST E.V.) GERMANY
THALASSAEMIE VEREIN ULM E.V. GERMANY
Seltene Anaemien Deutschland (SAM) GERMANY
SYLLOGOS PASHONTON APO MESOGEIAKI ANAIMIA NOMOU KORINTHIAS GREECE
Federation of Indian Thalassemics INDIA
Foundation Against Thalassaemia (Regd.) INDIA
INDIAN ASSOCIATION OF BLOOD CANCER & ALLIED DISEASES INDIA
MALABAR T.H.A.S. SOCIETY (KERALA) INDIA
Mumbai Thalassaemic Society INDIA
NIVETHAN TRUST INDIA
National Thalassaemia Welfare Society (Regd) INDIA
PARENTS’ ASSOCIATION THALASSAEMIC UNIT TRUST (MUMBAI) INDIA
RESEARCH SOCIETY OF BJW HOSPITAL FOR CHILDREN INDIA
SOUTH EAST ASIA INSTITUTE FOR THALASSAEMIA INDIA INDIA
THALASSAEMIC CHILDREN WELFARE ASSOCIATION (REGD.) INDIA
THALASSEMIA AND SICKLE CELL SOCIETY INDIA
THALASSEMIA SOCIETY (KARNATAKA) INDIA
The Thalassaemia Society of India INDIA
Esfahan Thalassaemia Society IRAN (ISLAMIC REPUBLIC OF)
DIWANYAH THALASSAEMIA ASSOCIATION IRAQ
IRAQI THALASSAEMIA ASSOCIATION IRAQ
Mercy Association for Thalassaemia Patients in Wasit IRAQ
SICKLE CELL AND THALASSAEMIA IRELAND IRELAND
THE GALILEE FOUNDATION OF THALASSAEMIA & SICKLE CELL ANEMIA ISRAEL
ASSOCIAZIONE LOTTA ALLA TALASSEMIA DI FERRARA ITALY
ASSOCIAZIONE THALASSEMICI DI TORINO ONLUS ITALY
UNITED ONLUS ITALY
KUWAIT THALASSAEMIA SOCIETY KUWAIT
ETUDIER, COMBATTRE LES MALADIES DE L’HEMOGLOBINE LUXEMBOURG
JOHOR THALASSAEMIA SOCIETY MALAYSIA
PERTUBUHAN THALASAEMIA PULAU PINANG MALAYSIA
THALASSAEMIA ASSOCIATION OF MALAYSIA MALAYSIA
MALDIVIAN THALASSAEMIA SOCIETY MALDIVES
THALASSAEMIA AWARENESS MALTESE ASSOCIATION (TAMA) MALTA
BLOOD DONORS ASSOCIATION (MAURITIUS) MAURITIUS
THALASSEMIA SOCIETY OF MAURITIUS MAURITIUS
ASSOCIATION MAROCAINE DE THALASSAEMIE ET DREPANOCYTOSE MOROCCO
OSCAR NEDERLAND NETHERLANDS
Sickle Cell / Thalassaemia Association of Nigeria NIGERIA
ABBOTONIANS MEDICAL ASSOCIATION PAKISTAN
AFZAAL MEMORIAL THALASSAEMIA FOUNDATION (AMTF) PAKISTAN
Amina Bashir Memorial Trust PAKISTAN
KASHIF IQBAL THALASSAEMIA CARE CENTRE (TRUST) PAKISTAN
Pakistan Thalassaemia Welfare Society (Regd) PAKISTAN
RIFAH WELFARE FOUNDATION PAKISTAN
THALASSAEMIA PATIENTS & PARENTS SOCIETY OF PAKISTAN PAKISTAN
BALIKATANG THALASSEMIA PHILIPPINES
MINDANAO THALASSEMIA FOUNDATION INC PHILIPPINES
ASSOCIACAO PORTUGUESA DE PAIS E DOENTES COM HEMOGLOBINOPATIAS PORTUGAL
Al Ahsa Association Charity for Genetic Diseases SAUDI ARABIA
AL-Madina Hereditary Blood Disorder Charity Society SAUDI ARABIA
SAUDI FRIENDS’ CHARITY OF THALASSAEMIA & SICKLE CELL ANEMIA SOCIETY SAUDI ARABIA
South African Thalassaemia Association SOUTH AFRICA
Alheta (Asociacion Espanola De Lucha Contra Las Hemoglobinopatias Y Talasemias) SPAIN
THE SUDANESE PATIENTS AND PARENTS SOCIETY FOR SICKLE CELL SUDAN
TAIWAN THALASSAEMIA ASSOCIATION (TWTA) TAIWAN
THALASSEMIAC AND LEUKEMIC PATIENTS TURKEY
UAE Genetic Diseases Association UNITED ARAB EMIRATES
OSCAR SANDWELL UNITED KINGDOM
VIETNAMESE THALASSAEMIA ASSOCIATION VIET NAM

 

TIF Voting Members

Name Country
ALBANIAN THALASSAEMICS ASSOCIATION (ATA) ALBANIA
THALASSAEMIA AUSTRALIA INC AUSTRALIA
THALASSAEMIA SOCIETY OF NEW  SOUTH  WALES AUSTRALIA
SAVAB DUNYASI THALASSAEMIA ASSOCIATION AZERBAIJAN
Azerbaijan Thalassaemia Society INSAN AZERBAIJAN
BAHRAIN NATIONAL HEREDITARY ANAEMIA SOCIETY BAHRAIN
BANGLADESH THALASSAEMIA SAMITY (SOCIETY) BANGLADESH
BULGARIAN ANTI-THALASSAEMIC ORGANISATION (BATA) – SOFIA BULGARIA
THALASSAEMICS’ ORGANIZATION IN BULGARIA BULGARIA
Thalassemia Foundation of Canada CANADA
CHILDREN’S THALASSAEMIA FOUNDATION LTD Hong Kong
ΠΑΓΚΥΠΡΙΟΣ ΑΝΤΙΑΝΑΙΜΙΚΟΣ ΣΥΝΔΕΣΜΟΣ CYPRUS
EGYPTIAN THALASSAEMIC FRIENDS ASSOCIATION EGYPT
GREEK THALASSAEMIA FEDERATION (EOTHA) GREECE
THALASSEMICS INDIA INDIA
Yayasan Thalassaemia Indonesia INDONESIA
CHARITY FOUNDATION FOR SPECIAL DISEASES IRAN (ISLAMIC REPUBLIC OF)
Iranian Thalassaemia Society IRAN (ISLAMIC REPUBLIC OF)
THALASSEMIA ASSOCIATION IN NINIVA IRAQ
ISRAELI ASSOCIATION OF THALASSAEMIA & SICKLE CELL ANEMIA ISRAEL
ASSOCIAZIONE LIGURE THALASSEMICI ONLUS (ALT) ITALY
ASSOCIAZIONE TALASSEMICI E DREPANOCITICI LOMBARDI ONLUS (ATDL) ITALY
ASSOCIAZIONE VENETA PER LA LOTTA ALLA TALASSEMIA (AVLT) ITALY
FONDAZIONE ITALIANA “L. GIAMBRONE” PER LA GUARIGIONE DALLA THALASSEMIA ITALY
JORDANIAN THALASSEMIA & HEMOPHILIA SOCIETY JORDAN
CHRONIC CARE CENTRE LEBANON
FEDERATION OF MALAYSIAN THALASSAEMIA SOCIETIES MALAYSIA
Society for Health Education MALDIVES
MOROCCAN ASSOCIATION OF THALASSAEMIA AND HEMOGLOBIN DISEASES (MATHED) MOROCCO
Nepal Thalassaemia Society NEPAL
THALASSAEMIA FEDERATION OF PAKISTAN PAKISTAN
Thalassaemia Society of Pakistan PAKISTAN
PALESTINE AVENIR FOUNDATION PALESTINE (OCCUPIED)
THALASSEMIA PATIENTS FRIENDS SOCIETY (TPFS PALESTINE) PALESTINE (OCCUPIED)
ASOCIATIA PERSOANELOR CU TALASEMIE MAJORA ROMANIA
THALASSAEMIA SOCIETY (SINGAPORE) SINGAPORE
Kurunegala Thalassaemia Association SRI LANKA
THALASSAEMIA PATIENTS AND HEREDITARY BLOOD DISEASES SYRIAN ARAB REPUBLIC
THALASSAEMIA FOUNDATION OF THAILAND THAILAND
THE SOCIETY FOR INHERITED & SEVERE BLOOD DISORDERS TRINIDAD AND TOBAGO LIMITED TRINIDAD AND TOBAGO
ALPHATT TUNISIE TUNISIA
(ATODER) ADANA THALASSAEMIA & SICKLE CELL ANEMIA TURKEY
AKDENIZ TALASEMI DERNEGI TURKEY
TADAD – THALASSEMI DAYANISMA DERNEGI TURKEY
TALASEMI FEDERASYONU (THALASSEMIA FEDERATION OF TURKEY) TURKEY
Emirates Thalassaemia Society UNITED ARAB EMIRATES
NEBATA (NORTH OF ENGLAND BONE MARROW & THALASSAEMIA ASSOCIATION) UNITED KINGDOM
UNITED KINGDOM THALASSAEMIA SOCIETY (UKTS)                                                          UNITED KINGDOM
Cooley’s Anemia Foundation                                                                          UNITED STATES OF AMERICA
YEMEN THALASSAEMIA & GENETIC BLOOD DISORDERS SOCIETY YEMEN