The eThalED courses offer specialised knowledge on the prevention and clinical management of thalassaemia to internationally-located medical specialists who have an interest and/or are involved in these areas. The courses are based on the “Guidelines for the Management of Transfusion-Dependent Thalassaemia (3rd edition, 2014)“.
The development of these courses falls within TIF’s mission to ensure equal access to quality treatment for all patients around the globe. Furthermore, the contribution of these courses is deemed particularly important given the constant migration fluxes that have been taking place in the last years, whereby populations from Africa and Asia, two continents that have traditionally been highly-prevalent in thalassaemia and other haemoglobin disorders, migrate to Europe due to war and other local circumstances, and inevitably contribute to marking a significant increase in the number of carriers (of the gene that causes the haemoglobin disorder) and/or affected individuals (people with the disorder) around the globe. In this context, haemoglobin disorders or haemoglobinopathies indeed constitute a global concern which calls for the establishment of robust public health policies on prevention, the promotion of specialized knowledge and multidisciplinary healthcare services for effectively managing the clinical challenges of this group of disorders and ensuring a quality life for patients.
The courses focus on β-thalassaemia, the most severe form of thalassaemia. A distinguishing feature is their emphasis on the patients’ perspective with regards to prevention and treatment of thalassaemia, which offers valuable insights on the importance of timely and comprehensive genetic counselling, the importance of maximising patient adherence to treatment and other key aspects involved in the changing doctor-patient relationship that favours a strong patient participation in all aspects of their treatment.
The courses are offered in English and there are provisions for expanding this offer in more languages.Read the eThalED leaflet (EN)
Aims and objectives:
- To offer specialized knowledge of thalassaemia epidemiology, inheritance and prevention, pathophysiology, diagnosis and associated complications.
- To assist medical specialists in dealing with the complexity of the disease
- To assist in the improvement of existing conditions and services for quality clinical management and support for people with thalassaemia.
Requirements for participation:
- Medical degree and specialisation in Internal Medicine, or Paediatrics, Haematology
- Previous experience in the treatment of Haemoglobinopathies will be preferred
The eThalED programme for medical specialists is comprised of 2 electronic courses covering in-depth key issues related to thalassaemia prevention and clinical management.
The aim of the two courses is to strengthen medical specialists’ knowledge of thalassaemia, introduce the patients’ perspective with regards to the various complex aspects of thalassaemia, and equip them with the necessary tools to seek further development.
Course 1: Prevention
Course 2: Clinical management
|Why prevention||Introduction to thalassaemia: genetic basis, pathophysiology and diagnosis|
|Epidemiology supporting prevention||Blood transfusions|
|Strategies for National Prevention Programmes||Iron overload and chelation|
|Practical aspects of effective prevention programmes- Screening||Cardiac complications|
|Ethical and legal issues||Liver and spleen|
|Endocrine disorders and osteoporosis|
|Fertility and pregnancy|
|Lifestyle and psychological support (incl. dental care)|
|Hematopoietic stem cell transplantation and novel therapeutic approaches|
|Organization of thalassaemia care|
Visit the Platform
There is a pre-selection process. The selected candidates will be sent a username and a password to log in to the platform shortly after their sign up.
A certificate will be given at the end of each module to the medical specialists who complete the pre-test (regardless of grade), review all the module content and pass the post-test (100% grade). Medical specialists can opt for any one or more particular modules e.g., Hepatology, Endocrinology, and/ or Cardiology, in which case they will be able to download only the certificate of the module they completed.
NB: This certificate does not equal or replace any university medical specialization or expertise
There is a dedicated forum (discussion board) attached to each one of the two courses. You can use these forums to discuss with other participants (medical specialists from around the globe) and TIF on the content of these courses or any other issues related to your practice.
To do so, you need to: (1) Add a new thread, (2) Name it after the topic of your discussion; and (3) Type in your questions, thoughts, observations, experiences.
The course is offered free of charge to interested medical specialists worldwide.
TIF also offers an electronic course for patients at https://thalassaemia.org.cy/platform-patients/ and a series of publications to assist your efforts.