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WHAT YOU NEED TO KNOW | EMA Recommends Suspension of Pfizer’s Sickle Cell Disease Drug Oxbryta
Oxbryta, which was designed to treat sickle cell disease, has been a crucial medication for patients with mild-to-moderate symptoms. Approved in the US under an accelerated process in 2019 and…
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NEW WAVE OF LEADERSHIP | WHO Appoints Regional Directors for Eastern Mediterranean, South-East Asia, and Western Pacific Regions
These influential professionals were selected by Regional Committees and confirmed by the Executive Board. Beginning their roles on 1st February 2024, Dr. Hanan Hassan Balkhy will take charge as Regional…
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NEWS | WHO Updates Essential Medicines List, Adds New Medicines for Thalassaemia
Until recently, the WHO EML recommended only deferoxamine for iron chelation, limiting patients’ access to other crucial pharmacological alternatives for the effective management of their condition. Since 2019, the Thalassaemia…
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IRON CONTROL | Disc Medicine And Mabwell Sign Deal For Licence To Antibodies Portfolio
Disc plans to initiate a phase 1 trial in healthy volunteers in the second half of 2023. MWTX-003 has the potential to address a wide range of hematologic disorders including…
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NEW | Bluebirdbio Releases Resources For Patients On Gene Therapy Zynteglo®
To help people who are living with or caring for someone who has β-thalassaemia major get substantial information about Zynteglo®, bluebird bio, the company behind this ground-breaking therapy, has recently…
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UNITED Onlus | The Italian Federation Of Thalassaemia Welcomes Newly Elected BoD
The assembly was held in the conference room of the Zone Hotel in Rome. The members of the new board are: Vindigni Raffaele, Outgoing President, elected Vice President Vicario Martinelli…
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THALASSAEMIA AND SICKLE CELL AUSTRALIA (TASCA) | Spring Newsletter 2022
Contents: Chair’s address Staff update TIF update TASCA Engagement In Memory of Lou Alborea TASCA kids’ page View the Newsletter HERE
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TIF Takes Active Part In The 71st Session of the WHO Regional Committee for Europe
TIF has participated in the 71st session of the WHO Regional Committee for Europe between 13–15 September 2021, which gathered six hundred high-level delegates, including over 30 Health Ministers from…
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