RARE Anaemias International Network (RAIN)
RAIN is a global, community-based organisation focused on all rare and ultra-rare anaemias. It is guided by a Steering Committee of patients and patient advocates, a Scientific Advisory Board of world-leading experts in rare anaemias, and a Member Network, all of whom provide support, information, and resources on different rare anaemias.
Recognising the similarities of thalassaemia with other rare anaemias, as well as the absence of disease-specific, globally oriented organisations for patients with these conditions, TIF proceeded to the creation of RAIN with the aim to share its expertise, infrastructure, and resources, and provide further support to the broader community of people with rare anaemias worldwide.
In collaboration with its members, RAIN has developed a Consensus Statement to share its purpose and what the network aims to achieve.