Projects

TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG)

TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG)

      IS BETA – THALASSAEMIA OR SICKLE CELL DISEASE IN YOUR PIPELINE?   LEARN ABOUT PATIENTS’ EXPECTATIONS, PERSPECTIVE, CHALLENGES AND BURDEN OF DISEASE BY ENGAGING WITH TIF’s INTERNATIONAL…
Epidemiology data bank on haemoglobin disorders

Epidemiology data bank on haemoglobin disorders

The epidemiology project of TIF focuses on the collection of information on carrier rates, anticipated births and current status of haemoglobinopathy control strategies within health systems in the different country…
Haemoglobinopathy Reference Centres

Haemoglobinopathy Reference Centres

This is one of TIF’s new projects undertaken for the year 2013 and its goal is to develop a database for Haemoglobinopathy reference centres across the world, mapping the services…
Telemedicine

Telemedicine

European Network for Rare Anaemias

European Network for Rare Anaemias

TIF has played a leading role as a partner in the European Commission-funded project ENERCA (European Network for Rare and Congenital Anaemias). The project aims to bring experts together to…
European Patients’ Academy on Therapeutic Innovation

European Patients’ Academy on Therapeutic Innovation

TIF has engaged in a project with EFGCP’s, the EU-funded European Patients’ Academy on Therapeutic Innovation’ (EUPATI). This is a patient-led academy, which will develop educational material, training courses and…
Electronic Infrastructure for Thalassaemia Research Network

Electronic Infrastructure for Thalassaemia Research Network

The ITHANET portal is a community website dedicated to thalassaemia and other haemoglobinopathies, offering a range of services including continuous updates on the upcoming conferences, interesting recent publications and talks.…
Magnetic Resonance Imaging (MRI)

Magnetic Resonance Imaging (MRI)

Clinical care in thalassaemia major has improved dramatically over the last three decades, resulting in an impressive increase in survival rates and quality of life of patients living in countries…
DOMAINE

DOMAINE

DOMAINE is a European project that aims to create a safe and sufficient blood supply, by comparing and recommending good donor management practice. From 2008 to 2011, the DOMAINE project…
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