Thalassaemia Care Delivery From A Patient Perspective



The Thalassaemia International Federation (TIF) has launched a surveillance project in conjunction with the Open University of Cyprus (OUC) to better understand the health and social care services provided in your country, with a focus on chronic patients such as those with thalassaemia.

Survey Objectives

To achieve this, a report containing all policies and services available to thalassaemia patients in countries around the world must be compiled/produced. TIF and the OUC have created a short survey questionnaire to collect crucial information on various characteristics of each nation linked to thalassaemia patient treatment, including insurance coverage, social services, and key public health indicators.


Expected Outcomes


TIF’s ultimate goal is to be able to better identify and assess the level of unmet needs for the patients it represents, as well as to collaborate closely with all relevant stakeholders, including patients/families, health care professionals, and, most importantly, competent health and social care authorities, in order to promote improvements in the context of National Programmes and associated Strategies.

How to Contribute

If you have thalassaemia, please complete the survey below. Share this survey with your peers to help TIF reach as many people with thalassaemia as possible! To encourage participation, the survey has been translated into 24 languages.

Choose your preferred language!

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