Members News


We are delighted to share with you some exciting news received from the Ministry of Heath of Palestine! Many congratulations to the health authorities of the State of Palestine and the ‘Thalassaemia Patient’s Friend Society (TPFS) for the ongoing  efforts in addressing challenges and needs of the Palestinian patients. ...
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Click here to read the latest newsletter from the Safe Blood Transfusion Programme in Pakistan!...
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On the occasion of the International Thalassaemia Day the Hellenic Association for thalassaemia and the Association "Source of Life ', organized an event on 8 May 2016 at a local beach in Thessaloniki to create awareness about thalassaemia. During this event, material was distributed to inform the public and to...
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A celebratory event took place on the 8th of May in Nepal, organized by the Nepal Thalassaemia Society. Many Members of the Nepal Parliament, doctors, thalassaemic patients, their family and the wider public attended this event. Government officials were also present. The aim of this event was to make the National...
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Thalassemics India celebrated the day this year by an awareness campaign & fund raising event under our “Helping Hands Project”. The Press was invited to a meet with the aim to sensitize the general public and the concerned authorities. The Media was addressed about some of the important issues : incidence...
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The Society for Inherited and Severe Blood Disorders Trinidad and Tobago (SISBDTT) organized a marathon aiming to motivate and unite patients and their families and many key stakeholders. On  15 May 2016 SISBDTT gathered  parents, patients and  relevant stakeholders to complete a marathon in the area of the Caribbean Largest...
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Click on the link to read the update on TIF's delegation visit to Pakistan, 5-6 April 2016.    ...
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We are delighted to share with you that Mr Panos Englezos, ‪#‎TIF ‬President, has participated in a ‪#‎conference‬ titled "Presenting the 3rd Edition of the Standards for the Clinical Care of Children and Adults with‪#‎Thalassaemia‬ in the ‪#‎UK‬" which was organized by ‪#‎UKTS‬ and the UK Forum on ‪#‎Haemoglobin‬ ‪#‎Disorders‬, on 12 May 2016 in ‪#‎London‬. This was a a very...
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The Fatima Medical Laboratories, Islamabad (FML),  is one of the leading diagnostic facilities in the private sector in Pakistan with 8 branches in different cities.  This year, to celebrate the International Thalassaemia Day, the FML have launched a vigorous and enthusiastic campaign to show its support to the global thalassaemia family.  In...
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Click here to to read the April issue of the Safe Blood Transfusion Programme in Pakistan....
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On The occasion of International ‪#‎Thalassemia‬ Day 8th May 2016, the Sri Aurobindo ‪#‎Medical‬ ‪#‎College‬ and the PG ‪#‎Institute‬ in association with the‪#‎Indian‬ Academy of Paediatrics (‪#‎Indore‬ Branch) organized a one-day‪#‎seminar‬ for ‪#‎doctors‬ and an ‪#‎interactive‬ ‪#‎counselling‬ session for‪#‎patients‬ and their ‪#‎parents‬. The keynote ‪#‎speaker‬ was Dr V. P Choudhary, Director of the Sunflag Pahuja Center for ‪#‎Blood‬ ‪#‎Disorders‬ and former Head of the ‪#‎AIIMS‬department of Hematology of ‪#‎NewDelhi‬, who gave an excellent presentation on the ‪#‎clinical‬ ‪#‎diagnosis‬ of ‪#‎thalassaemia‬ and...
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The Foundation Against Thalassaemia (FAT) arranged a tour to Rajasthan, India for children with thalassaemia. This event was attended by the Rotary Club of Faridabad Central’s President, Suresh Sharma, its Secretary, Kishore Bahl and other officials. During the tour, lectures were given to inform the participants about the prevention and management...
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The Fatimid Foundation in Pakistan will organize the following activities in the context of the International Thalassaemia Day, on 8th of May 2016: International Thalassaemia Day Seminar at a local hotel Drawing, painting, music, and public speaking competitions  The objectives of these activities are to create awareness about thalassaemia and the challenges that...
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We are delighted to share with you that in the context of the 8th of May preparations, the anthem for thalassemia - Precious Ruby has been translated and the joyous and hopeful message conveyed by the anthem was spread to everyone in Mauritius. We also have the pleasure to inform you that various...
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Many activities were held in Egypt  to create awareness  about thalassaemia. A few of these are the following: Many competitions were held which have ended on 19 February 2015. The winners, who have already been announced, won  a free journey to visit Mecca and Madina Monoara in Egypt.  Additionally, the national association ofEgypt also held competitions...
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The Charity Foundation for Special Diseases (CFFSD) in Iran  is planning the following activities and events in 2016: 1- Organizing an educational gathering for the International Thalassaemia Day, centered around the everyday life challenges faced by thalassaemia patients. Medical experts and professionals from different fields such as haematology, endocrinology, metabolism, cardiovascular and reproductive science as...
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We are pleased to inform you that this year  Thalassemics India shall be observing the International Thalassemia Day. The Thalassemics India in collaboration with the Indian Red Cross Society will be holding and awerness campaign with blood donation camps and thalassemia screening sessions throughout Delhi and NCR. On the 8th of...
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We are pleased to inform you that this year  Thalassemics India shall be observing the International Thalassemia Day. The Thalassemics India in collaboration with the Indian Red Cross Society will be holding and awerness campaign with blood donation camps and thalassemia screening sessions throughout Delhi and NCR. On the 8th of...
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A press conference will be organized to honour the International Thalassaemia Day on Friday 6th of May in Rome, Italy. The purpose of this press conference is to disseminate the results of a survey conducted in close collaboration with the UNITED, SITE (Italian Scientific Society for Thalassemia and Hemoglobinopaties), the ISTUD Foundation...
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In Portugal, the International Thalassaemia Day was celebrated with the organization of many events by the Associação Portuguesa de Pais e Doentes com Hemoglobinopatias in collaboration with other Patient Organizations and health professionals of the Alentejo region, in the south of Portugal. Among the events that took place, a blood donation camp was...
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On the occasion of commemorating the International Thalassemia Day on 8, May 2015, the Thalassemia Association of Argentina in collaboration with the Network of Transfusion Medicine GCABA co-organised a Campaign to encourage voluntary blood donation. The event was also supported by the National Blood Plan Department of the Ministry of Health of the...
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This year, participants across UK and beyond put on the UKTS souvenir T-shirt, and brought their family, friends, and pets to the beautiful and scenic Alexandra Palace for the 2nd International Thalassaemia Day Walk . This year, money was raised to help continue the invaluable work the society is doing. UK Thalassaemia Society...
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Patients Invited to Apply for Distinguished Scholar Award The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2015 CAF ApoPharma Distinguished Scholar Award.  CAF will award up to two scholarships to a U.S. citizen(s) with a clinically significant form of thalassemia pursuing doctoral studies in biomedical sciences, including medicine,...
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The members of the Mevlana Solidarity Association for Thalassemia Patients and their Families in İzmir (Mevlana Talasemi Hastaları ve Aileleri Yardımlaşma Derneği ile İzmir) held a friendly football match in Izmir, on 9 August 2015. The players of the match consisted of thalassemia patients who joined the game to create awareness about the...
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Cooley’s Anemia Foundation (CAF) has organised its 2015 Patient/Family Conference!  For 2015, this anticipated annual event was held between 26-28 June at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference was a unique opportunity for U.S. individuals with thalssemia and their family members...
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The Patient group of the Balikatang Thalassemia Association in the Philippines has shared with us many excited developments: Blood Assistance: The Association has slowly forged partnership with the Philippine Blood Center, which invited its members to their annual "Dugong Bayani awards"" (Blood Heroes event) where thalassaemia patients thanked blood donors. Following this event, a...
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The Hamza Foundation Welfare Thalassaemia Hospital and Blood Transfusion Services in Peshawar, Pakistan organized a Blood donation Awareness Event for the occasion of the World Blood Donor Day on 14 June 2015 in Peshawar, Pakistan. The theme of the World Blood Donor Day 2015 was “Thank you very much for saving my life”....
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The Myanmar Thalassaemia Associationheld an event at the Yangon Children Hospital in Myanmar.  Over 103 thalassaaemia patients (children and adults) attended the meeting with their family members. Workshops for patients were given by haematologists, and representatives of the National Blood Center. Additionally, thalassaemia patients were provided free bone mineral density measurement, free...
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The Blood Patients Protection Council (BPPC) in India has organized an event to honour the World Sickle Cell Day and the  World Blood Donor day. The event took place on 14 June 2015 at the Regional Science Center and Planetarium, in Calicut.  The programme included blood donations, distribution of cash awards to blood...
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The Lighthouse at Chelsea Piers will be sporting a special glow on 4 June as Cooley's Anaemia Foundation (CAF) descends upon the venue to hold its 2015 Gala!  “This year’s Gala looks to be a very special evening,” says Anthony J. Viola, CAF National President. “As always, the Committee has done sterling work,...
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The Development Association for the Support of Patients with Blood Disorders(Association De Développement Pour L'aide Aux Malades Du Sang - ADAMS) in Morocco organized an event for the International Thalassaemia Day on 23 May 2015. The aim of this event was to raise awareness for thalassaemia and other haemoglobinopathies. The event was a great success having...
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We are delighted to inform you that the 1st Hunan Thalassemia Congress, held by the New Sunshine Foundation on 9 May 2015 in the Changsha city, in the capital city of Hunan province, was  a great success! The Beijing New Sunshine Charity Foundation and its branch in Hunan province (hereafter called “New Sunshine”)...
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Τhe Thalassaemia Society of Pakistan celebrated the International thalassaemia Day through an awareness campaign in collaboration with major educational institutions of the city.  Lectures, seminars and a walk were organized at the Liberty market roundabout, a commercial hub of the most populated area of the city. A large number of patients their...
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The International Thalassemia Day was observed on 8 May 2015 by the Federation for Indian Thalassemics at the Sri Sathya Sai International Centre, in New Delhi, India. This year was special as it was organised ‘by the thalassemics for the thalassemics’.  The programme of the event included Bollywood dance performances by the Shamak...
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On the occasion of the commemoration of the International Thalassemia Day on Friday, May 8, theThalassemia Association of Argentina together with the Network of Transfusion Medicine (GCABA) organised a campaign for voluntary Blood Donation and registration of patients at the National Bone Marrow Registry of local Hospitals. The National Blood Plan of the...
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The Thalassemia Research at Children’s Hospital, (UCSF) in Oakland organised the World Thalassemia Day 14th Annual Blood Drive, on 7 May 2015, at its premises in Oakland, United States. In addition, on 9 May the  Root in the Boot Walkathon at Lafayette Reservoir, Lafayette, CA, USA. The aim of this event...
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In Bangladesh the International Thalassaemia Day was honoured with the organisation of a celebratory event at the Thalassaemia Welfare Centre of Bangladesh, Chittagong. The event comprised of many fun activities for patients, including lottery draws and discussion sessions. The activities revolved mainly around spreading awareness and knowledge about thalassaemia. Furthermore, the Bangladesh Thalassaemia Society...
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In Egypt, the 16th  National Thalassemia Conference was organised to commemorate the International Thalassaemia Day, between 6-7 May 2015, in Cairo. Various topics regarding thalassemia have been explored from international and national Scientists. The topics of Thalassemia management, care prevention and gene therapy have been widely discussed during the Conference.  The social program...
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This event was memorable and pleasant enriching the minds and hearts of all those who attended.  The Indonesian Thalassaemia Foundation has also organised a celebratory event in honour of the International Thalassaemia Day, 8 May 2015. ...
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The Thalassaemia Society of Australian set a stall with information at the Monash Medical centre in Clayton. The aim of the stall is to reach out and inform and engage the community about Thalassaemia and sickle cell anaemia. Additionally, the 9th Australasian Gene and Cell Therapy Society (AGCTS) Conference was held at University...
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In India the following activities were held:    The International Thalassemia day was observed at Sri Sathya Sai International Centre on May 8th by the Federation of Indian Thalassaemics (FIT) through the organisation of a special event. The Chief Guest was Mrs. Maneka Sanjay Gandhi, Union Minister for Women and Child Development who was present...
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The Emirates Thalassaemia Society has organized a celebratory eventfor the winners, the participants, and the supporters of the social media competition entitled ‘What is Thalassemia?’ The event took place on 23 April 2015 in Dubai. This event was held under the patronage of the wife of His Highness Sheikh Dr Sultan Bin...
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We are overjoyed to inform you that the European Patients’ Academy organised a Workshop entitled “Patient Education Taking Off In Your Country”, on 22 April 2015, in Dublin. Nearly 190 representatives from patient organisations, industry, academia and regulatory authorities came to this event. The aim of this workshop was to learn about...
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The Blood Patients' Protection Council has observed Patients' Solidarity Day on 6 December 2014 by organising a marathon forpatients and parents with blood disorders in front of Medical College Hospital in Calicut, Kerala, India. The marathon was organised to honour the memory of patients who died of thalassaemia and to pay a special...
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National Day Celebration with the UAE Thalassemia Patients! Under the patronage of the Wife of His Highness Dr. Sheikh Sultan Bin Khalifa Bin Zayed Al Nahyan, Adviser to the Ruler of the State, H.H. Sheikha Sheikha Bint Saif Al Nahyan, Chair Person of Emirates Thalassemia Society, the Society organized a fun...
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National Day Celebration with the UAE Thalassemia Patients! Under the patronage of the Wife of His Highness Dr. Sheikh Sultan Bin Khalifa Bin Zayed Al Nahyan, Adviser to the Ruler of the State, H.H. Sheikha Sheikha Bint Saif Al Nahyan, Chair Person of Emirates Thalassemia Society, the Society organized a fun...
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Bowling for a Cure! On 16 November the Suffolk chapter of Cooley's Anaemia Foundation (CAF) held a"Bowling for a Cure" event at Bowlmor Lanes in Melville, NY.  Organized by Sarah and Mike Connolly, parents of Zayna, an adorable little girl with thalassemia, this was a marvelous way to have fun while raising...
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Bowling for a Cure! On 16 November the Suffolk chapter of Cooley's Anaemia Foundation (CAF) held a"Bowling for a Cure" event at Bowlmor Lanes in Melville, NY.  Organized by Sarah and Mike Connolly, parents of Zayna, an adorable little girl with thalassemia, this was a marvelous way to have fun while raising...
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The Blood Patients Protection Council (BPPC) Kerala, an organization for blood disorder patients like Thalassemia, Sickle Cell Anemia, Hemophilia, and Leukemia has organized a Marathon on 25 October 2014 at S.K.Pottakkad square Calicut. Renowned writer and gynecologist, Dr.Khadeeja Mumthas inaugurated the Marathon.  After the completion of this event, BPPC organized a...
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Blood Patients Protection Council (BPPC) organized a Rally for blood disorder patients as a part of a Global Action Programme The Blood Patients Protection Council (BPPC) Kerala, an organization for blood disorder patients like Thalassemia, Sickle Cell Anemia, Hemophilia, and Leukemia has organized a Rally on 25 October 2014 at S.K.Pottakkad...
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This service has been funded by the outstanding event held last year from our friends – Mates on a Mission. Play is an integral part of a child's life. From birth play helps children to learn, to relate to others and to have fun. Play can also enhance a child's development...
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Cooley's Anemia Advocacy Forum Update: CAF Meets with Government Agencies  The Cooley's Anemia Advocacy Forum (CAAF) is a project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community.  On 24 September, the Cooley's Anemia Foundation hosted a government-wide...
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The Blood Patients Protection Council (BPPC)organized a family meeting and dinner on 13September 2014 at Jaya Auditorium, Calicut. Hundreds of Patients with thalassemia, hemophilia, sickle cell anemia and leukemia from different parts of Kerala have participated in the program. A workshop was conducted on blood disorder diseases and a question – answer...
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Through a series of meetings, phone calls, and “listening sessions,” the Cooley’s Anemia Foundation (CAF) has been working diligently for months to assure that the Health Resources and Services Administration (HRSA), which is an agency of the U.S. Department of Health and Human Services, fully understands and appreciates the complications that are...
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Positive news from Azerbaijan. According to the official statement of the Ministry of Health of Azerbaijan Republic dated 09.07.2014 3 patients had undergone bone marrow transplantation at the Azerbaijan Thalassaemia Centre for the first time with the supervision of doctors from the Belorussian Transplantation Centre. The operation was paid for...
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The Balikatang Thalassaemia Foundation in collaboration with the Galloner's Club, the blood donors group, are planning a blood donation fellowship activity on 14 of June for thalassemia patients. ...
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On 11 March 2014, the Thalassaemia Association in Niniva (NTA) welcomed talented and gifted fifth grade students from different schools of Nineveh, where they met with the Vice President of the  NTS. The students also toured the Thalassaemia Centre hospital, in Ibn Al Atheer. During the meeting, the students also...
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Furthermore, the International Thalassemia Day 2014 was honoured in Nagpur(Maharashtra) by theThalassemia Society of Central India. In this context, an event was organised on 8 May in Nagpur which consisted of a workshop, and many other festivities including performances, singing, and dancing by Thalassemia Major Patients. In addition, on 7May 2014,...
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The Meena Health Welfare Organization, together with the Afghanistan Cricket Board (ACB), the Afghanistan Child Protection Foundation (ACPF), the Ihsas Social Association (ISA) andother Associationsorganized an event that gathered management, volunteers, and patients to celebrate the Thalassemia International Day 2014 on 8 May in Kabul, Afghanistan. ...
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The Hamza Foundation Welfare Hospital and Thalassaemia Center in Pakistan organised an event on 8 May in Pakistan for thalassemia patients and their parents. This event also included a Marathon, created with the aim of raising awareness about thalassaemia. Holding placards and banners, thalassemic children and their parents aimed to raise awareness about...
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The International Thalassaemia Day on 8th May, was also celebrated by the Pakistan Thalassaemia Welfare Society. A special seminar was arranged for the day, which was attended by Madam Al Jourah Abdullah Alarifi, Wife of Ambassador of Saudi Arabia in Pakistan, and many world knownhealth professionals such as Dr. Saeed Elahi,...
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The Blood Patients Protection Council (BPPC) in India organized a workshop in honour of the International Thalassemia Day at the Regional Science Centre & Planetarium, in Calicut on Thursday, on 8th of May 2014. Hundreds of thalassaemia patients and their families participated in this event with great enthusiasm.  The Minister of Education of...
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The Balikatang Thalassaemia Foundation in the Philippines and the Quezon City Health Department have partnered with Novartis Healthcare Philippines to celebrate the International Thalassaemia Day on 8 May at the Quezon City Hall. The Balikatang Thalassemia Association (BATHA) focused on the following components, for this year’s International Thalassaemia Day, coded through BATHA's...
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The Egyptian Thalassemia Association has celebrated the 21st International Thalassemia Day, by organising the 15th International Thalassemia Conference on 7-8 May 2014 in  Cairo at the Cairo International Conference Center. Cairo has provided the unforgettable setting for this meeting and gave a wealth of opportunities to network, to provide all the recent updates on...
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On Sunday 4th May 2014 the UK Thalassaemia Society, held its third sponsored walk at Alexandra Palace, North London. After the success of last year’s walk, it was decided to would give participants the option of walking or running double the distance! More than 100 people participated and other Trustees and their...
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The Thalassemia Association in Nineveh in collaboration with the Guidance Unit of the Science Collegeof the University of Mosul, held a workshop entitled " Thalassemia: pain and hope" on Monday 21 of April 2014 at the Hall of the Faculty of Science at the University of Mosul. The workshop was held under the...
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The Punjab Thalassemia Prvention Programme (PTPP) and the Pakistan Academy of Family Physicians (PAFP) have joined hands working together to prevent Thalassaemia. In this regard, the Project Director of PTPP has presented an overview of the organisation at the FAMILYCON Conference, which took place on 9 March 2014, in Pakistan....
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The Regional Multan Center of Punjab Thalassaemia Prevention Program (PTPP)has organized an awareness activity on 5 March 2014 at the Kabirwala Campus of the Virtual University of Pakistan with the main objective of raising awareness about Thalassaemia Prevention. Dr. Shahid Hafeez (RC Multan PTPP) was the main facilitator of this session. Students...
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In Bhopal, the Madhya Pradesh Council of Science & Technology and the Department of Biotechnology of RKDF University co-organised the “Hands-on Training in Molecular Analysis of Haemoglobinopathies”, promoted by the Global Research & Welfare Society in Bhopal (GRWSB), on 3- 8 March 2014 at the Department of Biotechnology of the...
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Furthermore, the cultural and social forum of Thalassemia Association in Nineveh organised the first Spring Camp for Thalassaemia patients aged over 17 years. This event took place in the Alasdair Tourism Compound in Mosul in the governorate of Nineveh, on 13-14 of February 2014. The number of participants of the camp...
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Think Foundation in collaboration with the Mahindra Finance Services Ltd in Mumbai organised a One-Day Blood Donation Camp on 5 February 2014 at the Mahindra Finance Services Ltd Premises, Worli. Volunteers from all parts of India and ethnic communities participated on a large scale for this noble cause. The camp...
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Ms. Claudia Rutt, former CEO of the German Bone Marrow Donor Center (Deutsche Knochenmarkspenderdatei GmbH - DKMS) in Germany, visited Sri Lanka on 15 January 2014. Ms. Rutt was received by the Lanka Thalassaemia Circle, where she was welcomed by thalassaemic children. She has also participated in the assembly of...
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Five global healthcare organizations have established a Consensus Framework for Ethical Collaboration on 13 January 2014 in Geneva that will aim to deliver greater patient benefits and support high quality patient care. Derived from codes of ethical practice and health policy positions of the five supporting organizations, this framework is based on...
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