TIF at the EURORDIS Membership Meeting!

We are pleased to share with you that TIF, represented by Mrs Lily Cannon, TIF Administrations Manager, is currently in Madrid attending the EURORDIS Membership Meeting (EMM 2015) which is taking place between 29 - 30 May.

Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease. The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance policies and services for rare disease patients in their country and local communities.

The EURORDIS Membership Meeting provides an opportunity for EURORDIS members to network, sharing best practices and increasing knowledge of issues integral to member organisations and the rare disease community and environment in each member’s country.