Current News

Published on Dec 2016
The National Council for Scientific Research of Lebanon (CNRS – L) in recent years has established the prestigious Research Excellence Award, as a means to acknowledge research excellence and innovation. Thus, in recognition of Prof. Ali Taher’s research to the national, regional and international scientific community, he was presented with...
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Published on Dec 2016
Important News: The Thalassaemia International Federation (TIF) appreciates and expresses its gratefulness! TIF establishes a ‘Prize for Outstanding Board Members’ Contribution to TIF’s Activities’. The First Winners were Announced! In the context of its Awards Scheme and its policy to express its gratefulness and appreciation to the work undertaken by members of...
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Published on Nov 2016
2nd Regional Conference Middle East Thalassemia and other haemoglobinopathies Amman - 11 & November 12, 2016 We are delighted to share with you that the 2nd Middle Eastern Regional Conference on Thalassaemia & Other Haemoglobinopathies was organized by the Thalassaemia International Federation (TIF) was completed with great success between the 11th and...
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Published on Nov 2016
As from 2016, Thalassemia International Federation (TIF) has established a new kind of Award to be included in TIF’s Awards Scheme the ‘Prize for Outstanding Patient’s Contribution to TIF’s Activities’. This Prize will be awarded on a biannual basis in the context of a  General Assembly or an International Conference as...
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Published on Jul 2016
We are delighted to share with you some exciting news received from the Ministry of Heath of Palestine! Many congratulations to the health authorities of the State of Palestine and the ‘Thalassaemia Patient’s Friend Society (TPFS) for the ongoing  efforts in addressing challenges and needs of the Palestinian patients. ...
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Published on Jun 2016
Click here to read the latest newsletter from the Safe Blood Transfusion Programme in Pakistan!...
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Published on May 2016
We are very pleased to share with you that the IBTO e-newsletter ( April- June 2016). Click here to read it...
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Published on May 2016
Click on the link to read the update on TIF's delegation visit to Pakistan, 5-6 April 2016.    ...
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Published on May 2016
We are delighted to share with you that Mr Panos Englezos, ‪#‎TIF ‬President, has participated in a ‪#‎conference‬ titled "Presenting the 3rd Edition of the Standards for the Clinical Care of Children and Adults with‪#‎Thalassaemia‬ in the ‪#‎UK‬" which was organized by ‪#‎UKTS‬ and the UK Forum on ‪#‎Haemoglobin‬ ‪#‎Disorders‬, on 12 May 2016 in ‪#‎London‬. This was a a very...
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Published on May 2016
On May 8, International Thalassaemia Day, ApoPharma Inc. thinks of the people whose lives are impacted by this condition, and recommits to working on their behalf.  As they salute their courage, strength, and accomplishments, they also remember their needs and concerns, and seek to give our best effort in all...
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Published on May 2016
  Resonance Health is delighted to announce that Chief Scientific Officer Professor Tim St Pierre has received a significant award from the Thalassemia International Federation (TIF), in recognition of the contribution made by FerriScan, the MRI-based measurement for liver iron concentration (LIC), to the lives of patients worldwide. TIF is dedicated to...
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Published on May 2016
  Elected at the end of March, the Council has already met once in April and will meet again in May to discuss the Strategic Approach & Action Plan for the 3 years to come. You can meet the members of the Council personally and give your input at RDI's 2nd Annual...
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Published on May 2016
As you are aware the theme of WHD2016 is ‪‎ELIMINATION‬. To celebrate the theme, we are launching the first ever global elimination movement for viral hepatitis on ‪WHD‬. This is a historic moment in the field of hepatitis which we invite you to celebrate with us on WHD. You can find out...
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Published on May 2016
The ‪‎BELIEVE‬‪ ‎researchers‬ are studying an ‎investigational‬ ‎drug‬ called ‎luspatercept‬ to see if it may reduce the number of transfusions you require! If you are 18 years of age or older and have β-thalassaemia requiring regular blood transfusions, you may be eligible to take part in the BELIEVE Study. Your doctor is the best source of information about your condition and its...
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Published on Apr 2016
                        World Health Day 2016: Action needed to halt rise in diabetes The number of people living with diabetes has nearly quadrupled since 1980 to 422 million adults, with most living in developing countries. WHO is marking World Health Day, 7 April, by calling for action on diabetes. In its first “Global...
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Published on Mar 2016
Trial of ‪‎Merganser‬'s beta ‪‎thalassemia‬ ‪‎drug‬ candidate begins a ‪‎clinical‬ ‪‎trial‬ is underway to evaluate Merganser Biotech's M012, which is being developed as a treatment candidate for conditions such as beta thalassemia and some subtypes of myelodysplasia....
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Published on Mar 2016
‎Whisky Tango Foxtrot‬ premier with ‎director‬ Glen Ficarra and ‎Tina Fey‬. the FICARRA name and ‪‎Thalassemia‬ has a rich history. Glen's grandfather Frank Ficarra was one of the founders of the Cooleys AnemiaFoundation. Two of his kids passed away with the disease. Frank's other son Bob Ficarra Glen's father is a prominent BoD and Executive Committee...
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Published on Mar 2016
Click here to watch the video: http://www.eurordis.org/tv?vId=9461&cId=0&wId=2174&mId=15095 ...
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Published on Mar 2016
Registration for ECRD 2016 is now open! To register, click here. Patients and their representatives/advocates are invited to register by downloading the interactive registration form here: A step-by-step guide on how to register is available here. All enquiries should be addressed to: DIA Europe, Middle East and Africa- Operations Team Tel: +41 61 225 51 51 Email: ECRD@DIAglobal.org...
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Published on Feb 2016
The Novartis Declaration for Patients - What Patients Can Expect Introduction We are inspired by patients. This inspiration motivates us to revolutionize the research, development and manufacturing of innovative, high-quality medicines that help people live longer, with a better quality of life, giving more time to do the things that matter to them. To...
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Published on Feb 2016
In the February 2016 issue of Haematologica, critical research of blood and blood-forming organs in Europe is given a boost. The European Hematology Association Roadmap for European Hematology Research: A Consensus Document summarizes the current status of basic, translational and clinical hematology research and identifies areas of unmet scientific and medical need in...
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Published on Jan 2016
Rare Disease Day 2016 “Join us in making the voice of rare diseases heard” People living with or affected by a rare disease, patient organisations, politicians, carers, medical professionals, researchers and industry today come together in solidarity to raise awareness of rare diseases. Rare Disease Day is a patient-led campaign and everyone...
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Published on Jan 2016
Click here to read an interesting article about the Cyprus National Health Plan (in Greek), written by TIF Executive Director, Dr Androulla Eleftheriou....
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Published on Jan 2016
Save the date for the Patient Adherence and Compliance Masterclass between the 25th and 26th of February, in Amsterdam Hotel Casa 400, Eerste Ringdijkstraat 4, Amsterdam, Netherlands. For more information, click here....
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Published on Dec 2015
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Published on Dec 2015
New Leadership at CAF as Gina Cioffi Pursues Graduate School and New Goals; Craig Butler to Assume New Position. Congratulations!...
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Published on Dec 2015
The University of Nicosia Medical School and the Thalassaemia International Federation (TIF) will jointly award, on a biannual basis, the ‘Panos Englezos Prize’, to an individual who has made an outstanding contribution in: i. the areas of public health relevant to haemoglobin disorders and/or ii. the improvement of medical and other care of...
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Published on Dec 2015
We are delighted to inform you that Dr Perla Eleftheriou, Medical Collaborator of TIF, is among the candidates for receiving the Academics and Scientists Award of the Madame Figaro Magazine (Cyprus)- Women of the Year 2015! Dr Perla Eleftheriou has undertaken the management of haemoglobinopathies in the Reference Hospital and...
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Published on Dec 2015
On Saturday 5 December, patients from across the world will join together to celebrate Patient Solidarity Day and declare that healthcare is a human right. Leading patients’ groups from six continents will host a range of events to raise awareness among the public and will urge decision-makers to respect, protect and...
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Published on Nov 2015
We are thrilled to share with you that TIF has attended the 40th Anniversary Event of the Greek Thalassaemia Association which took place on 28 November, in Thessaloniki. Mr Panos Englezos, TIF President, and Dr Androulla Eleftheriou, TIF Executive Director were given an honorary award during this event for their...
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Published on Nov 2015
TIF European Country Officer, Stelios Elia attended the European‪ ‎Medicines‬ Agency (EMA) Training Session for Patients’ and Consumers’ Organisations, held between 25-26 November 2014 in London, England. The event included an overview of the Agency, its procedures, how patients are involved in drawing up scientific advice, the Scientific Advisory Group (SAG) meetings,...
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Published on Nov 2015
We are delighted to share with you that ‪#‎TIF‬ attended the Sultan Bin Khalifa International Thalassemia ‪#‎Awards‬ Ceremony held in Abu Dhabi, on 19 November 2015. During this event, Mr Panos Englezos, President of TIF was also honored by the Sheikh of Abu Dhabi, Dr Sheikh Sultan Bin Khalifa Al Nahyan, President of His Highness...
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Published on Nov 2015
Don't miss the EURORDIS Photo Contest 2015! Join now!‪ ‎RAREbutREAL2015‬...
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Published on Nov 2015
A ‎delegation‬ visit was conducted between the 6th and 7th of November 2015, in ‎Jeddah‬, Kingdom of ‎Saudi Arabia‬. TIF was represented by Mr Panos Englezos, TIF President, Dr Androulla Eleftheriou, TIF Executive Director and Dr Michael Angastiniotis, TIF medical advisor. The main aim of the delegation visit was to address the need for adopting...
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Published on Nov 2015
We are thrilled to share with you that following the ‪TIF‬ ‪delegation‬ visit to Beijing, China between 5-7 July 2015, TIF has received in Cyprus a 10 member Chinese Contingent of the Beijing National University and the Beijing Angel Mom Charity Foundation, between 01-03 November 2015 in order to observe the services offered...
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Published on Oct 2015
A busy day here at TIF as the ‎MSc‬ in Inherited ‎Haemoglobin‬ Disorders: ‎Thalassaemia‬ and Sickle Cell Syndromes (Blended) is taking off!!! A very productive meeting was held at the TIF headquarters between Prof Dimitris Loukopoulos, the MSc Programme Cordinator, Dr Androulla Eleftheriou, TIF Executive Director, and Dr Michael Angastiniotis, TIF Medical Advisor! For more information on the...
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Published on Oct 2015
The plot revolves around a child born with thalassemia in a little town by the sea among hills and forests. Poetry, the lords and ladies of Byzantium, wolves, firs, and aspens bending in the wind and the search across the world for life-saving treatment for a child with thalassaemia are...
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Published on Oct 2015
For all of you who have just joined our community, the ‎ThaliMe‬ app and TIF's ‎DigitalLibrary‬ app will soon be available for download from the Apple Store and the Google Market. The first app is designed to connect, empower and assist ‎Thalassemia ‬patients giving the them the necessary tools to track their health and to network....
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Published on Oct 2015
More than 500,000 individuals are born annually around the world with haemoglobin disorders and a considerable percentage of these occur in the developing world and with high rates of morbidity and mortality. Since 1986, the Thalassaemia International Federation (TIF), based in Cyprus,  has been working officially with the World Health...
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Published on Oct 2015
We would like to congratulate Mrs Marina Reeves,a model with thalassaemia, for her participation in the Star Cyprus 2015 Beauty Pageant! The young contestant stated that "It was pretty hard, because during rehearsals I got tired easier, but I did not let it bring me down because I wanted to get...
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Published on Sep 2015
We are very proud to share with you that the 2nd Pan-Asian Conference has been conducted between 26-27 September 2015, in Hanoi, Vietnam with immense success! This conference was organized by TIF in collaboration with the prestigious National Institute of Hematology & Blood Transfusion (NIHBT) and its member national association, the...
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Published on Aug 2015
For the last 3 years, TIF has embarked on a new initiative, in the context of its continuous efforts to safeguard the quality of health care of patients with thalassaemia, residing all over the world. This initiative focused specifically on the education of patient/parent and health professional communities on the...
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Published on Jul 2015
July 2015 TIF calls for strenghtened collaboration and support on this day - World Hepatitis Day - 28 July 2015 Worldwide viral Hepatitis kills approximately 1.4 million people every year and more than 400 million people are chronically infected with Hepatitis B and/or C, including special patient groups such as patients with...
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Published on Jul 2015
We are thrilled to share with you that following the ‎TIF‬ ‎delegation‬ visit to Beijing, China between 5-7 July 2015, TIF has received in Cyprus a 10 member Chinese Contingent of the Beijing National University and the Beijing Angel Mom Charity Foundation, between 01-03 November 2015 in order to observe the services offered...
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Published on Jun 2015
It is our privilege to announce the receipt of another significant award:  the Outstanding Contribution Award by the University of Nicosia, Cyprus. TIF has received the Outstanding ‎Contribution ‪Award, which the University of Nicosia (UNIC) grants annually to individuals or institutions for their contribution to the society during the University's Graduation Ceremony held...
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Published on Jun 2015
14 June 2015, is World Blood Donor Day! The theme of this year’s campaign is "Thank you for saving my life". It focuses on thanking blood donors who save lives every day through their blood donations and strongly encourages more people all over the world to donate blood voluntarily and regularly...
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Published on Jun 2015
It is with great pleasure that we share with you that TIF has attended the 20th Congress of the European Hematology Association (EHA), taking place between 11-14 June 2015, in Vienna, Austria. This year is a special one for EHA; as an innovated congress program is introduced. The EHA Annual Congress...
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Published on Jun 2015
We are extremely proud to share with you the official video of the ‪‎68th World Health Assembly (68WHA)‬ award ceremony during which TIF was granted the prestigious Dr Lee Jong-wook Memorial Prize for its outstanding global contribution in the field of public health. The award ceremony was held during the...
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Published on Jun 2015
We would like to inform all academics, scientific and medical institutions, and all organizations that the process for submitting proposals for the Sultan Bin Khalifa International Thalassaemia Awards (SITA) is now open. This initiative aiming to award significant contributions in the field of thalassaemia and other Haemoglobinopathies has been established...
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Published on Jun 2015
We are pleased to share with you that TIF, represented by Mrs Lily Cannon, TIF Administrations Manager, is currently in Madrid attending the EURORDIS Membership Meeting (EMM 2015) which is taking place between 29 - 30 May. Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers...
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Published on Jun 2015
We are proud to announce that the ‪Thalassaemia‬ International Federation received the 2015 Dr LEE Jong-wook Memorial ‪‎Prize‬ for Public Health ‪‎WHA68‬ . The World Health Organization (WHO) has presented the Dr Lee Jong-wook Memorial Prize for Public Health to the Thalassaemia International Federation (TIF) at the 68th World Health...
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Published on Jun 2015
Three good friends! ...
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Published on May 2015
Bluebird‬ bio, Inc. announced that it has met with regulatory authorities in EU and USA to discuss potential ‪‎approval‬ pathways for its ‪‎LentiGlobin‬ BB305 for the treatment of beta-‪‎thalassemia‬ major. These discussions have resulted in general agreement from both agencies regarding bluebird bio's development plans, which could potentially result in accelerated...
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Published on May 2015
We are delighted to share with you a webcast with Dr Antonio Piga presenting the most recent Luspatercept Phase 2 data (ASH 2014 conference). This will serve nicely as a primer for those who are not yet familiar with the program prior to the European Hematology Association Congress, where an...
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Published on Feb 2015
TIF invites media to a press conference on 16 February 2015, 11:00 at the Journalists House in Nicosia for the official presentation of the Third Edition of Guidelines for the Clinical Management of Thalassaemia (TDT) This publication is an adaptation of the existing protocols on the treatment of thalassaemia. TIF, since 1999,...
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Published on Feb 2015
We are delighted to inform you that a special ceremony for the election of Mr. Anastasios II. Leventis as an Honorary Doctorate of the Faculty of Applied Sciences of the University of Cyprus will be held on Tuesday, 17 February 2015 at the Ceremonial Hall of the University of Cyprus...
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Published on Jan 2015
In the context of an initiative aiming to make rare diseases more visible, the 1st International Congress on Clinical Genetics and Genetics Counselling in Rare Diseases, genetic insidER is organised by Cabana Genetics. Official languages: Spanish/English (all sessions will have interpretation into English and Spanish)   Please read the Conference Programme here. ...
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Published on Jan 2015
It is that time again, time for the 11th annual Iron Warriors® Art Contest! Here’s your chance to show off your creativity! The purpose of the contest is to raise awareness about Thalassaemia and the importance of treatment compliance for everyone, and to give you a chance to show off your...
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Published on Jan 2015
Want to learn about new scientific findings and progress made in translating science into diagnostics, management and novel treatment of patients with red blood cell and iron disorders? Join the EHA-SWG scientific meeting on red cell and iron disorders & myelodysplastic syndrome (MDS) which is aimed towards physicians, hematologists and...
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Published on Dec 2014
We would like to share an important update regarding the preliminary results from a Phase 2 Study presented during the 56th American Society of Hematology (ASH) Annual Meeting & Exposition on 7 December 2014 in San Francisco. The recent data have shown that Luspatercept (ACE-536) has increased Hemoglobin and decreased...
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Published on Dec 2014
The sessions on 13 June 2014, supported by the CML Advocates Network and Thalassaemia International Foundation, were very popular not only for hematologists, but also nurses, researchers and patient advocates attended the various session The first of the two EHA Patient Advocacy Sessions organized by the patient community addressed the issue...
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Published on Nov 2014
We are overjoyed to share with you that the 4th Pan European Conference on Haemoglobinopathies and Rare Anaemias has been completed with immense success with the avid and wide reaching participation of the Thalassaemia community in the European Region and beyond! The Board of Directors of the Thalassaemia International Federation...
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Published on Sep 2014
Invitation to Workshop on the Cyprus National Health Plan and its provisions on Rare Diseases which will be organised by the Cyprus Alliance for Rare Diseases (C.A.R.D.), of which TIF is a founding member. Date: 4 October 2014 (09.00 A.M)  Venue: University of Nicosia (CINE STUDIO Room) This workshop is held with the...
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Published on Sep 2014
We would like inform you on the latest updates on the Ebola Outbreak. In view of this out-break and for your own safety when travelling, please read the links below of the WHO website to carefully to get informed of how this epidemic is being controlled. Disease Outbreak Updates: Click here and...
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Published on Aug 2014
We would like to inform you of the following Events organised by EHA : ● 33rd Tutorial: EHA-ESH Tutorial on Thrombosis, Hemostasis, and Iron ● 34th Tutorial : ISHBT-EHA-ESH Tutorial on Lyphoid Malignancies ● 35th Tutorial: TSH-EHA-ESH Tutorial on Consultative Hematology - Case Based ● EHA-SWG Multiple Myeloma ● EHA-SWG Scientific Meeting Red cell and...
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Published on Jul 2014
Resolution WHA63.18, adopted in 2010 by the World Health Assembly, recognized viral hepatitis as a global public health problem and saw the need for governments and populations to take action to prevent, diagnose and treat viral hepatitis (To view the resolution click on this link ). Millions of people across the...
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Published on Jul 2014
Congratulations to thalassaemia patient Komal Soomro, whose engagement took place on 3rd March 2014 in Pakistan. Komal, who lives with her family in Dublin, Republic of Ireland, hopes to be married to her fiance Shaharyar in June 2014....
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Published on Jul 2014
Many thanks to the staff and pupils of St Michael’s Church of England School Oxford, for raising £110.95 In aid of the UK Thalassaemia Society. Young thalassaemia patient Sabrena Afridi (11), who attends St Michael’s, played a violin solo and sang at the local church in order to raise funds...
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Published on Jul 2014
By Rita Rodricks Andrew and Rita Rodricks are proud to announce the birth of our twins, Dylan and Ellie, born on the 19th June 2013 at North Middlesex Hospital. I am 44 years old, with thalassemia major; and we had been trying for 7 years to have a baby. It was...
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Published on Jul 2014
Everyone in the field of red cell haematology will be familiar with the name of Professor Elizabeth Anionwu (or to give her full title: Professor Elizabeth Nneka Anionwu, QBE, FRCN, RN, PhD, Emeritus Professor of Nursing, University of West London). In 1979 Elizabeth was appointed as the very first specialist...
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Published on Jul 2014
The UK Thalassaemia Society held its AGM on the 25th February 2014. We were delighted to welcome four new Trustees to the UKTS Management Committee - Tina Bhagirath, Chris Fassis, Anand Singh Ghattaura and Raj Klair. It is always refreshing for any organisation to have new people with new ideas...
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Published on Jul 2014
Royal College of Obstetricians and Gynecologists release: New guideline for managing Thalassaemia in pregnancy announced at the RCOG World Congress in India New advice for clinicians on the management of women with Thalassaemia in pregnancy, a condition that affects more than 70,000 babies worldwide each year, was published on 28 March 2014...
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Published on Jul 2014
We are delighted to express our warmest congratulations and pass on our most sincere greetings to Dr. Pearla Eleftheriou, Research Associate of the Thalassaemia International Federation (TIF), for having obtained the honorific title: Fellow of the Royal College of Pathologists (FRCP) of the Royal Collage of the United Kingdom. This title...
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Published on Jun 2014
19 June is World Sickle Cell Disease Day! This annual event commemorates the date in 2008 when the General Assembly of the United Nations adopted a resolution recognizing sickle cell disease (SCD) as a public health concern. World Sickle Cell Awareness Day provides an opportunity to increase understanding of SCD...
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Published on Jun 2014
It's our pleasure to share with you the toolkit for NTDT Voices. We truly hope that the range of tools that have been designed to meet your needs,will lead to a very inspiring, moving campaign with the motto "Together, Stand Up For Them ! Click here to download the Round Table...
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Published on Jun 2014
Read the Middle East Health Journal : Advances in Imaging (January-February 2014) for an interview with TIF executive director, Androulla Eleftheriou and Professor of Medicine, Hematology & Oncology and Associate Chair of the American University of Beirut Medical Center in Lebanon, Prof Ali Taher regarding the under-diagnosis and under-treatment of...
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Published on Jun 2014
The the Scientific World Journal: Updates in Hemoglobinopathies, Volume 2013 (2013), has included an article by TIF, entitled "The impact of Migrations on the Health Services for Rare Diseases in Europe: The Example of Haemoglobin Disorders. You can find this article, pages 40-50, by clicking here ...
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Published on Jun 2014
14 June is World Blood Donation Day! The focus of this year's World Blood Donor Day campaign is "Safe blood for saving mothers". Every day, about 800 women die from pregnancy or childbirth-related complications. Severe bleeding during delivery and after childbirth is a major cause of mortality, morbidity and long-term...
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Published on Jun 2014
We are pleased to announce that TIF Board Members attended the Board of Directors’ Meeting of the Thalassaemia International Federation, which was held at the Hilton London Kesinghton in UK, on the 31st of May - 1st of June 2014. During this meeting a number of key topics were presented...
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Published on May 2014
TIF in collaboration with the Nicosia Municipality, organized a press conference on the 8th of May, spreading the message that the responsibility of all of us is to secure the rights of patients with chronic diseases in times of economic crisis. The Nicosia Municipality supported this Press Conference with the...
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Published on May 2014
Additionally, TIF initiated the Project 8, in the context of the International Thalassaemia Day, aiming to diffuse knowledge and expertise regarding haemoglobinopathies, to all social levels, particularly amongst young people. In these lines TIF has taken steps to establish the ‘Red Day’ as a part of Project 8 at schools...
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Published on May 2014
TIF has organised a workshop on medical journalism, held on Tuesday, 6 May 2014, from 10:30 a.m. to 12:30 p.m. at the Journalist House in Nicosia. This workshop was placed under the auspices of the Union of Cyprus Journalists, the University of Nicosia, and the Cyprus News Agency acted as...
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Published on May 2014
For a second consecutive year, TIF has organized the Second Official Meeting of the Ambassadors Circle with great success. Prominent diplomatic personalities, ambassadors, consuls, former ministers of Foreign Affairs of Cyprus, and other Official Embassy Representatives of TIF’s member countries have attended this Meeting on 2 May 2014, at the Hilton...
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Published on May 2014
For the first time and in the context of the International Thalassaemia Day, TIF in collaboration with the Ministry of Education and Culture of Cyprus have organised the 1st TIF Student Drawing Contest entitled "Economic Recession: Observe – Join Forces – Safeguard Health" for High Schools and Senior High Schools...
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Published on May 2014
TIF has organised a Photography Contest in the context of this year's International Thalassaemia Day 2014. The aim of the contest was to raise awareness about thalassaemia and its subject was based on this year's theme for the 21st International Thalassaemia Day : "Economic Recession: Observe - Join Forces -...
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Published on Jan 2014
Experts with extensive and diverse experience in thalassaemia, visited Cyprus to review the "Guidelines for the clinical management of thalassaemia." In the context of their visit, Thalassaemia International Federation (TIF), the Cyprus Thalassaemia Association, and the Institute of Neurology and Genetics organized an interactive discussion between the experts and the...
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Published on Jan 2014
TIF’s official position regarding the case of the law suit against Novartis over the allaged kickbacks to Pharmacy firms. This does not constitute a matter that TIF or any other patient oriented organisation must or should get involved in, particularly in view of the potential damage that statements from patients...
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Published on Dec 2013
DATES: February 7-9, 2014 LOCATION: Rome, Italy CHAIRS: B Bain and M de Montalembert TOPICS: Alpha Thalassemia Beta Thalassemia PNH Diagnosis of red cells disorders in children Sickle Cell Disease Coagulation disorders in children CALL FOR CASES Hematologists in training are welcome to participate by submitting a clinical case. The chairmen of the Tutorial will review all cases and select the...
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Published on Nov 2013
The ENERCA experts have published a consensus document with recommendations for a better management of Sickle Cell Disorders and Haemoglobinopathies. The ENERCA recommendations are oriented to medical staff expert as well as non-experts in the field, offering objective and reliable information for the management of these diseases. The elaboration of such document...
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