Join us

Just One of the many Innovative activities creating a Network of strong collaboration: Unity is ourStrength

We would like to encourage you and your friends to join us in improving the health and lives of people with haemoglobinopathies

The Thalassaemia International Federation (TIF) is an umbrella organisation. Its membership is comprised of national thalassaemia and other disease-specific patients’ associations, health-related organisations and institutions, pharmaceutical companies, health professionals and interested individuals from around the world.

TIF now represents 195 national thalassaemia associations and other members from over 62 countries across the world.

Membership Categories:

  • General members include only thalassaemia and/or sickle cell disease patients’ associations, which are officially registered as non-profit, patients/parents NGOs in their respective countries
  • Voting members include general members that after completion of one year’s general membership become eligible, following BMs and GA’s approval, to be upgraded to Voting members, who constitute the only membership type with the right to vote and/or be voted (according to TIF’s Constitution)
  • Associate members are individuals, commercial or professional groups and disease-oriented patients’ associations, other than thalassaemia or sickle cell anaemia

To read more about Membership Categories, please read TIF’s Constitution

Membership Benefits

VOTING Members have: 

  • Opportunities to participate in TIF’s activities
  • Priority to obtain support from TIF for the organisation of local or national educational events
  • Priority in TIF’s educational sponsorship programme
  • 20% reduction in registration fees of TIF’s international conferences • Free subscription to TIF Magazine
  • The privilage to receive all new TIF publications free of charge 
  • The opportunity to participate in decision and policy making procedures
  • The opportunity to receive regular updates about new scientific and other relevant advances, events and reports of TIF’s current and planned activities The right to vote and to be voted.

GENERAL Members have: 

  • Opportunities to participate in TIF’s activities
  • The support of TIF in the organisation of local or national educational events
  • 10% reduction in registration fees of TIF’s international conferences
  • The opportunity to become voting members with all the related benefits
  • Free subscription to TIF Magazine
  • The opportunity to receive all new TIF publications free of charge
  • The opportunity to receive regular updates about new scientific and other relevant advances, events and reports of TIF’s current and planned activities 

Becoming a Member:

If you would like to become a member of TIF, based on the above description of the membership categories, we welcome you to fill in the suitable Application Form and return it to us either by email, or contact us via our telephone lines found here
or by post at:

Thalassaemia International Federation
Membership Application
P.O. Box 28807
2083 Strovolos, Nicosia
CYPRUS

Application Forms


Did you Know?

  • Red cells make up about 45% of the total volume of blood. Their main constituent is the protein “haemoglobin”. Their main role is to carry oxygen from the lungs to tissues and cells around the body, through the oxygen-carrying “haemoglobin”.
  • Thalassaemia major is a disorder of the blood. More specifically, a disorder of the haemoglobin molecule inside the red blood cells.
  • Thalassaemia is an inherited genetic disease, passed on from parents to children through the genes. It is not an infectious disease.
  • Carriers of thalassaemia are perfectly healthy individuals. The risk of giving birth to a child affected with thalassaemia is 25% when both parents are carriers and 0% when only one parent is a carrier.
  • β-thalassaemia major is today preventable and treatable. It is treated with regular blood transfusions and iron chelation and total cure is on the near horizon.
  • Today there is ample scientific evidence for appropriate diagnosis, monitoring and treatment of other, previously defined as ‘milder’ clinical thalassaemia syndromes, collectively given now the name “Non Transfusion-Dependent Thalassaemias”. These include β-thalassaemia intermedia, HbE/β-thalassaemia and HbH (α-thalassaemia).