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  • Sickle Cell Disease Patients’ Views on Oxbryta
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  • SurveysPhoto of Sickle Cell Disease Patients’ Views on Oxbryta
    6 giorni ago

    Sickle Cell Disease Patients’ Views on Oxbryta

    OXBRYTA (voxelotor) is a prescription medicine used for the treatment of sickle cell disease (SCD) and constitutes the first aproved…

    Read More »
  • NOVITÀPhoto of TIF’s Submission To The UK NICE’s Consultation Document For Zynteglo®
    7 giorni ago

    TIF’s Submission To The UK NICE’s Consultation Document For Zynteglo®

    On February 12, in an appraisal consultation document, the UK National Institute for Health and Care Excellence (NICE) recommended against the use…

    Read More »
  • Member NewsPhoto of Time To Get Ready For Rare Disease Day 2021!
    2 settimane ago

    Time To Get Ready For Rare Disease Day 2021!

    TIF joins forces with 300 million people around the world for the global observance of Rare Disease Day, coming up…

    Read More »
  • Clinical NewsPhoto of TIF’s Public Statement on Current Developments in Gene Therapy SCD Clinical Trials and Thalassaemia Gene Therapy Zynteglo
    2 settimane ago

    TIF’s Public Statement on Current Developments in Gene Therapy SCD Clinical Trials and Thalassaemia Gene Therapy Zynteglo

    The Thalassaemia International Federation (TIF) has been informed through official communication by both the European Medicines Agency (EMA) and bluebird…

    Read More »
  • NOVITÀPhoto of Meetings
    3 settimane ago

    Meetings

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  • NOVITÀPhoto of NOW PUBLISHED: The TIF ‘’Gene Therapy & Thalassaemia’’ Survey Report
    3 settimane ago

    NOW PUBLISHED: The TIF ‘’Gene Therapy & Thalassaemia’’ Survey Report

    Gene therapy for thalassaemia is an expensive and complex procedure, with great efforts ongoing currently by all involved stakeholders, such…

    Read More »
  • NOVITÀPhoto of TIF’s Point of View: Medicines Regulatory Systems – Continued Strengthening Is Required
    4 settimane ago

    TIF’s Point of View: Medicines Regulatory Systems – Continued Strengthening Is Required

    Access to quality-assured medical products improves health and saves lives. Nevertheless, one third of the world’s population lacks timely access…

    Read More »
  • Member NewsPhoto of TIF Supports IAPO´s Call For The Ratification Of The African Medicines Agency Treaty
    4 settimane ago

    TIF Supports IAPO´s Call For The Ratification Of The African Medicines Agency Treaty

    Two years after the Treaty to establish an African Medicines Agency was agreed, over 40 leading organizations, including the Thalassaemia…

    Read More »
  • Clinical NewsPhoto of The Lancet: Russian Coronavirus Sputnik V Vaccine Achieves Over 90% Efficacy
    Febbraio 3, 2021

    The Lancet: Russian Coronavirus Sputnik V Vaccine Achieves Over 90% Efficacy

    Russia’s Sputnik V vaccine was 91.6% effective in preventing people from developing Covid-19, according to peer-reviewed results from its late-stage…

    Read More »
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