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Gene Therapy for β-Thalassaemia Approaches European Market Approval

Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. TIF’s Expert Advisor, Dr. Carsten Werner Lederer, explores this critical issue in his article, by highlighting the recent conditional approval for ...

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World Hemophilia Day 2019

World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of the World Federation of Hemophilia. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together ...

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International Thalassaemia Day 2019 – Get inspired, get involved!

This is how this year’s voting results were shaped: Universal access to quality thalassaemia healthcare services: Building bridges with and for patients (Winning theme, 196 votes) Patients’ voice at the frontline: Advocating for a better future in thalassaemia care and management (112 votes) The globalization of thalassaemia – Common challenges ...

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TIF leads the way in creating a Community Advisory Board (CAB) in Europe for thalassaemia and sickle cell disease

  ANNOUNCEMENT:   Dear friends and esteemed collaborators, The Thalassaemia International Federation (TIF) since its establishment in 1986 has been a pioneer in providing the patients’ perspective in all health-related areas including policy-making, research, clinical trials, drug development etc, in a transparent manner, as laid out by its Code of ...

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Thal e-Course for Patients’ registrations open until March 8th!

At TIF we believe that well-informed patients are able to gain in-depth understanding of their condition and make purposeful decisions about their health! That being so, we are pleased to announce that registrations for the upcoming 6th class of its Thal e-Course for patients are now open! You can access the registration form here 👉 http://bit.ly/2BVkX9c    

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