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Archivi Autore: tifwp

GIVING BIRTH by Rita and Andrew Rodricks

We are proud to announce the birth of our twins, Dylan and Ellie, born on the 19th June 2013 at North Middlesex Hospital. I am 44 years old, with thalassemia major; and we had been trying for 7 years to have a baby. It was hard continuing with IVF (both ...

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Thalassaemia cure

At present, the only available approach to curing thalassaemia is bone marrow transplantation, following specific requirements that both the donor and patient must fulfil. Gene therapy is being studied as a potential cure for some patients. Bone Marrow Transplantation Bone Marrow Transplantation (BMT) or Haematopoietic Stem Cell Transplantation (HSCT) is a ...

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Clinical Trials and updates

Clinical trials are experiments or observations carried out in clinical research, designed to answer specific questions about new treatments such as novel vaccines, drugs etc. for further study and comparison.

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Beta Thalassaemia

What is beta thalassaemia This section is dedicated to beta (β-) thalassaemia syndromes of which β-thalassaemia major, also known as Mediterranean anaemia or Cooley’s Anaemia, is the clinically most severe one. THE MAJOR BETA (β-) THALASSAEMIA SYNDROMES ARE: β-thalassaemia major β-thalassaemia intermedia HbE/β-thalassaemia Other rare thalassaemias Many diseases in humans ...

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Sickle cell disease

SCD is caused by a haemoglobin defect, known as Haemoglobin S. In SCD, the bone marrow cannot produce enough healthy red cells. The red cells produced look like sickles, are not flexible and can stick on vessels’ walls causing blood clots and preventing oxygen from reaching the body tissues.

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World Health Organization

The Thalassaemia International Federation (TIF) works in official relations with the World Health Organization (W.H.O.), since 1996 and more specifically with the Chronic Diseases and Health Promotion Department (CHP).

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United Nations Economic & Social Council

TIF holds a consultative status at the United Nations Economic and Social Council, responsible for coordinating the economic, social, and related work of 15 UN specialised agencies, their functional commissions and five regional commissions.

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Industry and Research Foundations

TIF works with a network of pharmaceutical industries and research foundations that share a common interest in haemoglobin disorders (thalassaemia and sickle cell disease) and in the development of technologies relating to their prevention, treatment and monitoring.

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European Bodies

TIF maintains a close relationship with all the legislative bodies of the EU, holding meetings with key officials in the Commission and with Members of the European Parliament and frequently communicates with the Commissioner for Health and Consumers.

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